￼I have never been one to ask for help. My wife was hospitalized back on September 6 from what seemed to be stroke like symptoms. After 3 neurologist confirmed it wasn't a stroke, she's been diagnosed with Dystonia which left her in this condition. After 6 doctor's have deemed her disabled, the disability as you all know are dragging their feet. She has to go to treatments every week just to try and keep it maintained. Because insurance is not paying for her treatments, nor her medicine's, I am reaching out to you for help. We travel back and forth to NC for her treatments and it's going to be a very long process. I'm trying to keep us a float, but with only 1 income, and the tremendous cost of her treatments, medical bills and medications, I would appreciate anything you could give. Please help us if only a dollar, so she can continue to receive her treatments and medicine. Here is a little more info on what she has.
What is Dystonia?
Dystonia is a movement disorder.
Dystonia is characterized by persistent or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both. The movements are usually patterned and twisting, and may resemble a tremor. Dystonia is often initiated or worsened by voluntary movements, and symptoms may “overflow” into adjacent muscles. Dystonia is classified by: 1. clinical characteristics (including age of onset, body distribution, nature of the symptoms, and associated features such as additional movement disorders or neurological symptoms) and 2. Cause (which includes changes or damage to the nervous system and inheritance). Doctors use these classifications to guide diagnosis and treatment.
There are multiple forms of dystonia, and dozens of diseases and conditions may include dystonia as a symptom. Dystonia may affect a single body area or be generalized throughout multiple muscle groups. Dystonia affects men, women, and children of all ages and backgrounds. Estimates suggest that no fewer than 300,000 people are affected in the United States and Canada alone. Dystonia causes varying degrees of disability and pain, from mild to severe. There is not yet a cure, but multiple treatment options exist and scientists around the world are actively pursuing research toward new therapies.
Although there are several forms of dystonia and the symptoms may outwardly appear quite different, the element that all forms share is the repetitive, patterned, and often twisting involuntary muscle contractions. Dystonia is a chronic disorder, but the vast majority of dystonias do not impact cognition, intelligence, or shorten a person's life span.