Help for mom and daughter

Baby  Skylor  is now 7 months old. Texas Childrens Hospital is trying to ween her down on some of her medicines.  She now was trachostomy and that's how she is receiving oxygen.  All the tubes that was in her throat has been removed.  She is no longer in a paralyzed state  so therapist are working with her to teach her baby stuff. She had lost her sucking skills and stuff, but now she can suck her pacifier.  She watches tv, and her mom can hold her now [ she getting spoiled]. She had recent blood work and MRI, today the doctors will discuss  what will happen next. We are praying for her to get on the lung transplant list..It tears me apart when she have those episodes of shortness of breath and difficulty breathing. But all - n - all GOD IS GOOD  and he's bought her this far. We still don't know how long her and Stewaun  will remain in Texas.  Your support is still very much-needed and we thank you.
Parents Stewaun Booker and Terrell  Johnson.  Grandparents,  Pamela Williams Hawkes and Joan Johnson
Great grandma Ruth Williams.