Help Beulah with ALS Equipment and Caregiving

In July 2020, Beulah deVera-Schmitz, or Bu or Beuls for short, was diagnosed with definitive amyotrophic lateral sclerosis - known more commonly as ALS or Lou Gehrig's disease.

 

Within a very short time, from when Beulah was diagnosed with ALS disease, her abilities to function have been stripped away. Beulah’s condition has deteriorated quite rapidly. She lost her ability to walk within 6 months after the initial diagnosis. Within the last 4 months, Beulah has lost all control of her arms and hands, and now her breathing is affected due to the disease. She currently has a tracheostomy and is still in the hospital.

 

In short, she is essentially locked in a non-functioning body with a brilliant, perspective mind.

 

There are no answers for how one contracts ALS, and 90% to 95% of ALS cases have no known cause. However, without exceptions, ALS is a terminal disease with a terrible life and a painful death.

 

Something that most people do not realize is that ALS care expenses - specifically, the medical equipment, consumables, and nursing or the long-term care needed to take care of a patient and keep them alive - are NOT covered by most insurance plans across the world. We have investigated the various options available to us in the jurisdictions we have lived in, or had family in - specifically, Singapore, the United States, and the Philippines - and we have been confronted with the same type of response: that we cannot use insurance to support these expenses.

 

Therefore, we are seeking resources to cover the following expenses:

All of the unused resources collected via this GoFundMe will go directly into a donation fund to help subsidize other ALS patients.

 

Thank you again for reading this site, and we appreciate your time!

 

Please feel free to reach out if you have any questions or comments.