#milesforLIAM

Melissa Landa is organising this fundraiser.

Donation protected

Hello everyone,

My name is Irvin and I am writing this on behalf of my son, Liam. Liam has a rare condition called Beta-propeller Protein-Associated Neurodegeneration (BPAN for short). Liam has faced many challenges since being born but has overcome many obstacles with his fighting spirit. He is the definition of a true warrior

So for the month of July I would like to fundraise for Liam, I will be running #MilesforLiam and ask that for every mile I run, $1.00 be donated to spread awareness for BPAN and to also fund for research on this very rare disease. All funds will be sent into the BPAN team for research purposes since it is severely underfunded.

There is currently no treatment for BPAN and we face unknown obstacles ahead. Help me spread the word of BPAN, help me help my son. #milesforLIAM

@milesforliam

To learn more about BPAN, click this link!

https://www.nbiadisorders.org/about-nbia/bpan