Help Lauren to get out of bed
Donation protected
Hello, we are trying to raise money in order to get a ceiling track system in order to allow my awesome daughter Lauren to move from her bed into her wheelchair, recliner, and into her bathtub (she loves to soak in tub, moving her limbs in the water while listening to her music).
Lauren is a fighter and my best teacher in life. At 5 mths old she was diagnosed with the terminal Neuromuscular disease, Spinal Muscular Atrophy, type 1. They told us "she will die before her 1st birthday by choking to death or suffocating from the weight if her body". Needless to say, that was the worst day of our lives, how could this be, she was lying there smiling at us.
She has proven to everyone that she is on her own timeline. Now at 13 yrs old she is smart as a whip, like all children with SMA it is their muscles that deteriorate while their minds are uneffected. She still has some small movement in her right fingers and in water she can move her arms and legs. Her teacher comes to the house 5 times a week and we try to take her on as many outings as we can so that she can experience as much as possible during her lifetime. But, as she has grown she has gotten to big to lift without difficulty and risk of injury to her and the person doing the lifting.
Having a ceiling track system will allow us to move Lauren from her bed into her bathroom and over her tub where she can then be lowered onto her bathchair. It will also allow her to be lowered anywhere along the track, such as into her wheelchair or her recliner.
Unfortunately, this is not covered by insurance. We had a company come out and give us an estimate, it will be 8,700. Not counting the modifications to the cieling/ doorway to accommodate the track.
Thank you for taking the time to read about my daughter and God Bless you for your assistance, whether it be by donation or prayer.
Lauren is a fighter and my best teacher in life. At 5 mths old she was diagnosed with the terminal Neuromuscular disease, Spinal Muscular Atrophy, type 1. They told us "she will die before her 1st birthday by choking to death or suffocating from the weight if her body". Needless to say, that was the worst day of our lives, how could this be, she was lying there smiling at us.
She has proven to everyone that she is on her own timeline. Now at 13 yrs old she is smart as a whip, like all children with SMA it is their muscles that deteriorate while their minds are uneffected. She still has some small movement in her right fingers and in water she can move her arms and legs. Her teacher comes to the house 5 times a week and we try to take her on as many outings as we can so that she can experience as much as possible during her lifetime. But, as she has grown she has gotten to big to lift without difficulty and risk of injury to her and the person doing the lifting.
Having a ceiling track system will allow us to move Lauren from her bed into her bathroom and over her tub where she can then be lowered onto her bathchair. It will also allow her to be lowered anywhere along the track, such as into her wheelchair or her recliner.
Unfortunately, this is not covered by insurance. We had a company come out and give us an estimate, it will be 8,700. Not counting the modifications to the cieling/ doorway to accommodate the track.
Thank you for taking the time to read about my daughter and God Bless you for your assistance, whether it be by donation or prayer.
Organizer
Cristina Loeffler Martin
Organizer
Chesapeake, VA
