Because of this he is having to travel to adelaide women's and children's hospital to receive specialised treatment from the australian cranio facial unit. This comes at a very high financial cost. We have just returned from ten days of appointments with various specialists to assess his case. we are now returning in a week to undergo more invasive testing including an angiogram and oximitrey study. This is the second of what will be many trips to receive the treatment he needs to be able to lead a normal life. these visits will continue well past his teenage years.
These visits include visits with a ear nose and throat specialist, ophthalmologist, neuro surgeon, cranio facial surgeon, speech therapist, neuro psychologist, respiratory specialist, pediatrician, and social worker. These visits are proving very costly and financially it is hard, but it is the only way to ensure he gets the treatment he requires to lead a normal life.
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