Golden Sky's Heart of Faith Fight!

Golden Sky's Heart of Faith Fight!

This GoFundMe has been started in honor of Golden Sky, our beautiful Angel. Golden was born to Charmaine and Jarrod at Tallahassee Memorial Hospital,Thanksgiving morning on 11/23/17. Golden instantly brought joy to our hearts as well as Golden's big sister, Soryah! Golden was born weighing 4 pounds 3 ounces and due to her weight Golden was admitted to the neonatal intensive care unit (NICU). While in the NICU Golden eating habit started to decline. During Golden's 6th day of stay in the NICU, one of the nurses notified the doctor that Golden was breathing heavy and that she was very lethargic after she would eat. The doctor instantly had a concerned look on his face. He ordered a cardiologist to evaluate Golden's heart, immediately. Naturally at that point concern, fear, and confusion began to set in on Charmaine and Jarrod's mind. Golden's heart was checked previously on a sonogram during regular pre-natal visits, and Charmaine and Jarrod were informed Golden's heart was normal. So they couldn't understand why the doctor wanted a heart specialists to evaluate their baby girl Golden. After a few hours of uncertainty the doctor gave Charmaine and Jarrod the news that would forever change their lives. The doctor told Charmaine and Jarrod Golden was born with a heart defect (Coarctation of the Aorta and Double Outlet Right Ventricle). The condition disabled Golden's blood to adequately flow through her body. In result of her blood not flowing properly, she was not fully oxygenated. That was the reason Golden would be literally gasping for breath after drinking just 15-30ml of milk. Charmaine and Jarrod were informed that Tallahassee Memorial didn't  specialize in Golden's condition. They were given two options, have Golden airlifted to UF Health Shands Childrens Hospital, in Gainesville, Fl. or to a hospital in Jacksonville,Fl. that specialized in heart conditions. Charmaine and Jarrod chosed UF Health Shands Children's Hospital. Golden arrived at UF Health Children's Hospital and was placed in their pediatric cardiac intensive care unit (PICU). Charmaine and Jarrod met with a team of amazing staff which included doctors, nurses, respiratory therapists and support staff regarding Golden's heart. The doctor's told Golden's parents that Golden heart was repairable, and that she would need a total of 3 surgeries.

Golden had her first procedure December 2017. Everything went as scheduled. Charmaine and Jarrod was estatic and all of the doctors were optimistic that Golden's heart condition would not keep her from living a normal life. A few weeks passed and Golden's recovery from her surgery went very well. However, it was discovered Golden had a restrictive airway, which made it difficult for her to breath and swallow. Those obstacles including vocal cord paralysis, post her initial heart surgery, prevented Golden from eating by mouth. The doctor's informed her parents that Golden would need a feeding tube (g-tube) that would be placed in her stomach. Jan 2018 Golden underwent surgery for the feeding tube. The surgery was successful and Golden  recovered  well and was able to intake milk via her feeding tube and avoid aspirating.

Feb 2018 Golden was released from the hospital and stayed home in her parents care for only 11 days. Golden was readmitted to the hospital due to  fluid accumulating around her heart. Charmaine and Jarrod were crushed in spirit. The doctor's told Charmaine and Jarrod that Golden would have to undergo surgery again to drain the fluid. The doctors always gave Golden's parents a time-frame of how long the procedure at hand could potentially take to complete. They were told this particular procedure of draining the fluid would take about 1 1/2 hours. However, approximately 3 1/2 hours later the doctors informed Charmaine and Jarrod that Golden was given a medication during the surgery that made her heart stop. Golden was given CPR for 12 minutes before she had a heart beat. The doctor's told Charmaine and Jarrod that Golden would have to remain on a breathing tube longer than normal. Because of her cardiac arrest Golden's heart was damaged even more during her code. Golden also had an irregular heart rhythm that caused her heart rate to go as high as the 200's. The doctor's were concerned that Golden heart could stop at any moment. The team of doctors decided with the approval of Golden's parents to place a pacemaker as a safety net  to prevent Golden's  heart from stopping at an alarming rate.

The pacemaker surgery took place March 2018. The surgery was successful and Golden's heart was paced at a controlled rate. A couple months passed and Golden was doing terrific. Her oxygen level was still critical due a restrictive airway and due to the lack of improper blood flow. Because she wasn't able to oxygenate herself fully her lungs retained dangerous levels of CO2, which required multiple intubations resulting in severe scarring of her throat which led to the decision of placing a tracheostomy. The doctors eventually informed Charmaine and Jarrod that the best option for Golden was a heart transplant. Golden was immediately placed on the transplant list in hopes of a heart. Even with the different surgeries taking place to help Golden with her oxygen and her blood flow she still had multiple codes totaling 9 cardiac arrest events  in all.

Even through the cardiac events and multiple codes Golden  refused to give up as well as her parents .  Her kidneys, liver, or neurological state was never affected 8 out of the 9 codes she endured, which is a miracle within itself. Golden's resilence, her fighting spirit  and display of God's power is alive and well in each of us! We are in the pursuit of giving Golden the celebration of life she deserves. Golden was priceless to her parents and family. Golden's mother stopped working, Golden's father transferred his job and relocated the family to be closer to Golden. Charmaine and Jarrod as well as the staff at UF Health Shands Children's Hospital (PCICU) dedicated their lives to ensure that Golden received the best care and love that she could possibly have. On September 17th Golden took her last breath and she was given healing and peace in God's arms. Golden will be laid to rest on September 29th. If it's on your heart to contribute to the family and to bless them with resources to give Golden the service she deserves, it is greatly appreciated. We want whoever read what our faith fight has been over the last 9 months to share our story, share our fight, and share our faith to encourage others to NEVER GIVE UP .... NO MATTER WHAT! Please continue to pray for our strength.

*Note:The parents of Golden Sky will be in charge of the final expenses
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  • Priscilla Wilson-Conyers 
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  • Renee Brown 
    • $40 
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  • Angela RN 
    • $25 
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  • Jarrett Kearse 
    • $100 
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Organizer

Charmaine White 
Organizer
Orlando, FL
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