Give Alexandru Vlad Junior hope for his spine
Donation protected
Hello, my name is Alexandru and I am 4 years old. I was born with a rare condition, a mutation in the COL6A2 and RYR1 genes, also known as the Ullrich syndrome and, respectively, muscle and bone dystrophy. Due to this illness, my muscles are very poorly developed thus I cannot walk yet and my spine is deformed.
Unable to find a solution in my country, we sought help abroad. The doctors in Germany assured me that there is a treatment. For the last 15 months I have been following their advice, wearing progressive corsets, with promising results regarding my posture. However, the next steps are much more complex, requiring surgery and many years of auxiliary medical care. Unfortunately, the financial implications of this project exceed by far the possibilities of our family and acquaintances (the minimum amount needed is of 96000 €).
According to the German doctors from ALTONAER KINDERKRANKENHAUS in Hamburg, the sooner the surgery is performed, the more chances I have to recover quickly and completely. This is because the muscle and bone deformation worsens in time, consequently requiring an even more complex medical procedure. Ideally the surgery should be performed without delay.
The raised funds will be used to cover the expenses of the private medical treatment, as well as the auxiliary costs (including the general hospital services for me and my mom for a period of 2 months).
We are very happy to have found the place and professionals whose expertise can help me overcome this disorder. At this moment, the financial barrier is the only thing preventing me from living a normal life.
Being already 4 years old and unable to walk is a great sadness for me and my family. With all my heart I wish that someday I will run freely alongside other children, but this perspective is still very far away. Please give me a helping hand so that my most precious dream can turn into reality.
I will remain eternally grateful, together with all those who love me!
Unable to find a solution in my country, we sought help abroad. The doctors in Germany assured me that there is a treatment. For the last 15 months I have been following their advice, wearing progressive corsets, with promising results regarding my posture. However, the next steps are much more complex, requiring surgery and many years of auxiliary medical care. Unfortunately, the financial implications of this project exceed by far the possibilities of our family and acquaintances (the minimum amount needed is of 96000 €).
According to the German doctors from ALTONAER KINDERKRANKENHAUS in Hamburg, the sooner the surgery is performed, the more chances I have to recover quickly and completely. This is because the muscle and bone deformation worsens in time, consequently requiring an even more complex medical procedure. Ideally the surgery should be performed without delay.
The raised funds will be used to cover the expenses of the private medical treatment, as well as the auxiliary costs (including the general hospital services for me and my mom for a period of 2 months).
We are very happy to have found the place and professionals whose expertise can help me overcome this disorder. At this moment, the financial barrier is the only thing preventing me from living a normal life.
Being already 4 years old and unable to walk is a great sadness for me and my family. With all my heart I wish that someday I will run freely alongside other children, but this perspective is still very far away. Please give me a helping hand so that my most precious dream can turn into reality.
I will remain eternally grateful, together with all those who love me!
Organizer
Alexandru Vlad
Organizer
Court-St.-Etienne
