Genetic Testing for Brüklyn

This is our baby girl Brüklyn. We need genetic testing done to get more specific answers for her. She has a rare disorder Growth Hormone Resistance but there are some other red flags that doctors are trying to figure out before treatment can commence. Such as high blood pressure (her being calm and sitting still) so additional testing is required. In a few weeks we are getting a Renal Ultrasound and an Echocardiogram done in Phoenix and going back to Minnesota for her follow ups. We've gotten denial after denial letter from our insurance. We are doing what we can but anything would help. Thank you.