Gabe's Leukemia and Moyamoya Journey

I am going to try this and write the story in my own words in hopes that it will get out there more and help our family out.  Gabe is a 10 year old boy who was healthy happy and always full of energy.  Starting in December of last year he had a pretty bad cold that would not go away.  We took him to a new Dr. after the first week of him not getting better and were told he had the flu and it had been to long for medicines and for it to run its course.  Around this time almost everyone in our family had gotten sick, so the dr again said well its a virus and its just being passed around.   Another week passed by and he was getting worse and worse by this time he was getting very over exhausted and sleeping alot and starting to lose his color.  We found him a new dr around January 1st, right away she wanted to run a few test.  So we took him in for his first blood test three days later went by and it was "unreadable".  Then again we went back for another again to have it come back "unreadable".  By this time gabe was getting to where he couldn't walk long barely eating and was not his normal self.  Our Dr really thought he was suffering from sever anemia.  She called us back in to have us go to a specialty clinic to have his blood drawn this was on January 15th.  Little did we know the following day would be THE WORST DAY OF OUR LIVES.  I got the phone call from Gabriel's Dr around 9:30 AM, she did not tell me much on the phone she just said "Mrs. Coronado pack some bags and head to Cook Children's immediately Gabe will be getting admitted everything was sent over and they will be waiting in the ER department for you".  I asked her if she could tell me anything she said all i can say is he is very very anemic and needs blood right away. At this time my heart sank I had been doing research a few nights before and I knew what we could possibly be facing. So many emotions and fear went threw my head I was terrified.  Once there they took us straight away to a room and started to run test on Gabe.  I have never seen so many people in one room poking, moving, taking vitals and moving someone around like that before.  After about 45 minutes which seemed like hours on end the nurse sold us something that just shut my world down!! We will be testing right away for ACUTE ONSET LEUKEMIA! Something a parent never wants to hear.  They took Gabe away to run test and scans on him an hour later Dr. Ray came in.  I knew this wasn’t good the Dr. coming in with a hematologist and nurse to talk to us.  He came and stood next to me and told me I’m sorry your son has LEUKEMIA.  I felt like my world stopped like a cloud was over my head I couldn’t think or say anything i felt like I was drowning.  He told us we are very lucky Gabe was still here and alive he came into Cook Children's with hemoglobin of a 2 which is the lowest they have seen there ever.  Over the next 48 hours Gabe had to receive several blood transfusions (8) and platelet transfusions (3) to get him healthy enough to have surgery to place his port.  Not once through all this did he complain or anything he just wanted to make sure everyone else was okay my son is my super hero he has taught me through all that he has gone through in this last two month span to be happy and thankful for the moment you are living in. He has showed me to never take anything for granted to live life to the fullest and love each person who is in your life.   He told me in the hospital "mommy I know you are scared but so am I and I can not give up !! I have to be brave and strong "    These last nine months has been a stressful emotional roller coaster.   Just last month in August we got yet another diagnosis on Gabe YES ANOTHER this time nothing to do with his cancer ! Not like he needs anymore to pile on.  He was diagnosed with a very rare brain disorder it effects 1 out of every 300,00 people.  Moyamoya, what is moyamoya you ask ?  Moyamoya disease is a rare, progressive cerebrovascular disorder caused by blocked arteries at the base of the brain in an area called the basal ganglia. The name “moyamoya” means “puff of smoke” in Japanese and describes the look of the tangle of tiny vessels formed to compensate for the blockage.  Moyamoya can causes strokes seizures and horrible headaches.  This has caused a silent stroke on Gabe's right side of his brain.  Right now the only thing we can do is monitor it and watch it through MRA scans of his brain and eventually he will beed bypass surgery to help open up his vessels. Due to hospital stays long countless appointments and home school I had to quit my job so you can imagine the financial stress that comes with that.  If you could please help any small amount would help.  Please share and if you pray, Pray for my sweet boy.  Anyone who has ever met gabe will tell you how amazing he is.  He has a heart of gold and is a very special child.

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Donations

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  • Shelley Mix 
    • $100 
    • 15 mos
  • Gini Connolly 
    • $30 
    • 15 mos
  • Martha Rodriguez  
    • $20 
    • 15 mos
  • David Kaufman 
    • $25 
    • 15 mos
  • Tyler Warre. 
    • $20 
    • 15 mos
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Organizer

Stormy Coronado 
Organizer
Keller, TX
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