Funeral and Medical for Baby Joshua

Baby Joshua was born August 2, 2017. He was born at Methodist Medical Hospital Dallas. Joshua's parents and family had been anticipating his birth for 9 months with no indication of any complications or health concerns until he was born. Joshua was delivered via emergency C-Section during a routine check up when the OBGYN noticed he was not moving and had a faint heart beat. Upon delivery Joshua was not breathing and mom and dad did not get a chance to see or hold Joshua, he was rushed to NICU and an hour later we learned Joshua was not producing red blood cells, white blood cells, and no platelets. They had to administer a blood transfusion in order to save his life. Doctor Green was the attending doctor and he said they had never seen a case like this before, they were running tests and it would be 4-5 weeks before the results returned. They kept him on a ventilator and continued blood transfusions daily. About a week later we were informed Joshua had contracted MRSA, a staph infection at the hospital and on August 13th we learned that his lab work was sent to the wrong place and as a result did not make it to the lab within the 72 hour timeframe they have to test it. Time was running out. After looking at X-rays, and at his case closely they suspected a couple of rare genetic disorders. However, now, they had no blood to work with since all the blood in his system was from a blood bank! Joshua's parents never gave up hope on Joshua, but they started to look for help at other hospitals. Every day they asked the doctors if they learned anything new, but the answers were always the same, "we have no idea what he has, we've never seen anything like it." Without any answers and without a diagnosis, how did they know what they were treating? After switching Joshua's ventilator and removing a catheter from his stomach that was his main feeding tube and putting in a different one that was done bedside after three failed attempts Joshua appeared stable, but this is when his health started to deteriorate, his breathing and oxygen levels were off, his urine output diminished, so his kidneys were failing and he had jaundice, a sign of a damaged liver. One of the symptoms of the rare genetic disorder they suspect he might have is a small rib cage that keeps his lungs from growing normally and without the room to grow, he will not be able to breathe. Lungs expand with each breath, his rib cage was too narrow to allow his lungs to fully expand. We needed help from specialists that had experience and HAD seen cases like this. After informing the doctor our plans to pursue a transfer and use the Teddy Bear Transport team to make it possible , Joshua passed away an hour later after his heart suddenly failed. We were told it was a result of gas that had collected around the lungs and prevented the lungs from functioning. His heart rate went down and we lost him. We still have no answers as to what caused this. We were prepared to bring a baby home and had all his essential needs ready, what we were not prepared for was his funeral.
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Organizer and beneficiary

Melanie Pinales 
Dallas, TX
Nora Pinales 
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