Funds For Evan
Donation protected
Help for Evan.
Pleases help raise funds to help Evans family buy a car modified to support Evans disability.
Evan Hearne is a 3 and a half year-old boy with a severe neurological disorder, “Leigh’s Syndrome”, a mitochondrial disease. Sounds ominous right? Unfortunately it is. This rare disease is characterized by progressive loss of mental and physical abilities, which will affect Evan’s life span. Many people with this disease rarely see their teens.
Right now Evan can’t walk, talk, stand up or feed himself. His swallow is severely affected and soon he will need to be peg fed. He can, for now, sit up and shuffle, much like a 9 month old baby, but, unfortunately, will lose even these abilities at some stage in the near future.
Leigh’s Syndrome affects his energy levels and his ability to fight off infections. Evan suffers from severe respiratory problems and has a nebulizer and suction pump at home..
All this said Evan is a happy little boy who loves nothing more than hanging out with his big brother James and his big sister Amber. His family’s only wish is to provide Evan with a good life, to meet his needs and to keep him comfortable for however long they will have him in their lives.
The big ask!
Doctor and hospital visits are, unfortunately, far too often, part of Evans life. His mother, Joanne, has to lift and carry Evan continuously, getting him to and from his various medical appointments. This is now proving increasingly difficult. To help Evan in his daily life he now needs a car, which is wheelchair accessible. This will greatly help improve both Evan and his families’ quality of life. Every little will help make a big difference to this wonderful boys life. Any donations are greatly appreciated and will go directly towards providing a more suitable form of transport for Evan.
Heart felt thanks from Evan and Familyx.
Pleases help raise funds to help Evans family buy a car modified to support Evans disability.
Evan Hearne is a 3 and a half year-old boy with a severe neurological disorder, “Leigh’s Syndrome”, a mitochondrial disease. Sounds ominous right? Unfortunately it is. This rare disease is characterized by progressive loss of mental and physical abilities, which will affect Evan’s life span. Many people with this disease rarely see their teens.
Right now Evan can’t walk, talk, stand up or feed himself. His swallow is severely affected and soon he will need to be peg fed. He can, for now, sit up and shuffle, much like a 9 month old baby, but, unfortunately, will lose even these abilities at some stage in the near future.
Leigh’s Syndrome affects his energy levels and his ability to fight off infections. Evan suffers from severe respiratory problems and has a nebulizer and suction pump at home..
All this said Evan is a happy little boy who loves nothing more than hanging out with his big brother James and his big sister Amber. His family’s only wish is to provide Evan with a good life, to meet his needs and to keep him comfortable for however long they will have him in their lives.
The big ask!
Doctor and hospital visits are, unfortunately, far too often, part of Evans life. His mother, Joanne, has to lift and carry Evan continuously, getting him to and from his various medical appointments. This is now proving increasingly difficult. To help Evan in his daily life he now needs a car, which is wheelchair accessible. This will greatly help improve both Evan and his families’ quality of life. Every little will help make a big difference to this wonderful boys life. Any donations are greatly appreciated and will go directly towards providing a more suitable form of transport for Evan.
Heart felt thanks from Evan and Familyx.
Organizer
Catherine Fitzgerald Hartnoll
Organizer
