Fundraising for Maftuna and Guldona's medicine

Dear Friends,  and Donors

Sisters Maftuna, 9 years old, and Guldona Kamiljanova, 6 years old, need your help. The young girls were diagnosed in the Institute of Immunology, Moscow with Ataxia Telangiectasia (Louis-Bar Syndrome), a rare genetic condition that affects the nervous system and can lead to lung disease and cancer. Maftuna and Guldona live in Uzbekistan and their parents are struggling to pay for daughters' treatment. Each injection of 30 mg Octagam, a medicine that reduces the severity of certain infections, costs  them around ~ $2000 -$2400 per month.

Girls mom  Razzaqova  Mehribon describes that the girls getting pale day by day and she can’t work and must stay with her daughters all the time. These little angels need your caring and support any amount helps.  Your support will be spend to buy Octagam, medicine  to reduce the severity of certain infections, cover transportation and any other expenses. 
My name is Fakhriddin Pirlepesov and I live in the US. I work at the Children's Research Hospital and I'm familiar with children like Maftuna and Guldona. I came across Maftuna and Guldona's story on Facebook through Aziza Umarova and Marat Qlichev. Both of them live in Uzbekistan and fundraise to help desperate children like Maftuna and Guldona. Unfortunately, their fundraising only covers a fraction of medical expenses. The girls and their family need all the help they can get, so we hope to raise more money with this fundraiser.

The money will be transferred to the girls' mom, Razzaqova  Mehribon using MoneyGram.
 We hope to cover the family’s expenses of Octagam and transportation. 

Girls live in the following address:

"Azad Aul" Village, house # 188
District Beruni
Republic of Karakalpakstan

Below Maftuna and Guldona riding a bicycle and toy car.
Part of the doctors diagnosis records are also given below in Uzbek language. 


 See top
  • Zamira Balgabaeva 
    • $20 
    • 16 d
  • Adolat Matniyazova 
    • $50 
    • 19 d
  • Akhdiyor Sattarov 
    • $100 
    • 22 d
  • Zakhid Aripov 
    • $50 
    • 26 d
  • Anonymous 
    • $50 
    • 1 mo
See all

Fundraising team (3)

Fakhriddin Pirlepesov 
Raised $165 from 5 donations
Cordova, TN
Pirlepesova Adolat 
Team member
Марат Клычев 
Team member
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