Lee's Cancer Fund
Donation protected
Three years ago I was diagnosed with a very rare cancer entitled Ocular Uveal Melanoma. (If you look it up, I have apparently outlived the majority already)
It was self contained in my right eye. My right eye was surgically removed.
I had periodic liver screens as the physicians were convinced that if it ever came back, it would show up there.
This past Spring, my vision became very bad in my only eye. Through many tests, a tumor was found in my eye socket. (Just two months after a clean CT Scan of my liver)
All the physicians that I have seen always look at the ground before looking at me when I ask them how bad it really is and all of them agree that they have never seen it come back in the other eye.
I have caught myself going through many stages of denial with this entire debacle but really and truly, I am pretty sick and some days don't even know what to make of all this.
They removed most of my malignant tumor at Emory but could not remove it all (left some in my optic muscle) or the odds were that I would be rendered blind.
It is a single cell cancer and has since metasisized in my liver, lungs and now my spleen.
Chemo does not work on this often fatal cancer that spreads very fast. Thus far, there is no cure.
I survived the four treatments of YerVoy that is an immune booster (new drug) in hopes of winning this battle. The cancer continues to spread.
They have done all that they can do at the SC Oncology Associates in Columbia, SC.
I have been in search of ANY solution/cure as a last stretch effort to win this battle.
Finally, I have been accepted for a Harvard Clinical Trial to be performed at the Dana-Farber Cancer Institute in Boston.
Thus far, our insurance is "out of network" although we continue to hope for the best on the outcome.
We will have to be in Boston a minimum of two months if not longer.
It is complicated to but the pharmeceutical company will only pay for some of the testing and much of the hospital and lodging will be on us.
I am not one to usually ask for assistance but several of my good friends have requested that I set up a site that they and others could donate to if they want.
Any help would be appreciated.
Thanks.
UPDATE
After two trips to Boston, countless hotels, planes, etc...Due to the Afordable Healthcare Plan, we were denied the entrance into the Clinical Trials in Boston.
We are back in SC awaiting approval for a possible pill that has been somewhat effective in stopping further growth of tumors like mine. We are on our second appeal. Time continues to slip on by.
It was self contained in my right eye. My right eye was surgically removed.
I had periodic liver screens as the physicians were convinced that if it ever came back, it would show up there.
This past Spring, my vision became very bad in my only eye. Through many tests, a tumor was found in my eye socket. (Just two months after a clean CT Scan of my liver)
All the physicians that I have seen always look at the ground before looking at me when I ask them how bad it really is and all of them agree that they have never seen it come back in the other eye.
I have caught myself going through many stages of denial with this entire debacle but really and truly, I am pretty sick and some days don't even know what to make of all this.
They removed most of my malignant tumor at Emory but could not remove it all (left some in my optic muscle) or the odds were that I would be rendered blind.
It is a single cell cancer and has since metasisized in my liver, lungs and now my spleen.
Chemo does not work on this often fatal cancer that spreads very fast. Thus far, there is no cure.
I survived the four treatments of YerVoy that is an immune booster (new drug) in hopes of winning this battle. The cancer continues to spread.
They have done all that they can do at the SC Oncology Associates in Columbia, SC.
I have been in search of ANY solution/cure as a last stretch effort to win this battle.
Finally, I have been accepted for a Harvard Clinical Trial to be performed at the Dana-Farber Cancer Institute in Boston.
Thus far, our insurance is "out of network" although we continue to hope for the best on the outcome.
We will have to be in Boston a minimum of two months if not longer.
It is complicated to but the pharmeceutical company will only pay for some of the testing and much of the hospital and lodging will be on us.
I am not one to usually ask for assistance but several of my good friends have requested that I set up a site that they and others could donate to if they want.
Any help would be appreciated.
Thanks.
UPDATE
After two trips to Boston, countless hotels, planes, etc...Due to the Afordable Healthcare Plan, we were denied the entrance into the Clinical Trials in Boston.
We are back in SC awaiting approval for a possible pill that has been somewhat effective in stopping further growth of tumors like mine. We are on our second appeal. Time continues to slip on by.
Organizer
Lee Bullington
Organizer
Lexington, SC
