wheelchair vehicle for Ila :)



Ila was diagnosed with a brain tumour when she was 11 months old. Almost 6yrs on due to the positioning of the tumour and damage done during surgery, Ila has got increasingly sicker and we have been told that there is no cure and she will not recover. She has recently been referred to pallitive care... 

Ila currently suffers with the following conditions- 

Pilomyxoid Astrocytoma/brain tumour, inoperable 
Hypothalamic pituatory dysfunction which has left Ila with Diabetes Insipidus, Adrenal insufficiency, hypothryroidism, no temperature control, no growth hormones, no sex hormones. Ilas Diabetes Insipidus and her adrenal insufficiency are incredibly hard to control as her absorption capabilities have been affected, some days her medication works then other days for no apparent reason they do not which can lead to an adrenal crisis and also severe dehydration. 
Only one lung function after having pneumonia, pleurisy and a collapsed left lung last October. Ila now contracts chest infections every few weeks and is constantly in hospital. 
Immuno suppressed 
Provoked epilepsy 
Global developmental delay, Ila can crawl but is unable to walk and has a limited vocabulary (she can say 7 words) 
Partial blindness, to what extent is unknown as she is an unwilling participant for an eye exam 
Severely obese, Ila weighs 30kgs 
Short term memory and brain function disturbances 

Because of all of Ilas medical conditions, her physical disability and her large size we have basically become housebound. 

I am hoping to raise enough money to purchase a wheelchair accessible vehicle for her so we can get out an about with much more ease. At the moment we transfer her from her wheelchair into a booster seat which is incredibly straining on our bodies and potentially dangerous for Ila if we were to drop her...

Any help is much appreciated, I have also attached a video of photos I made of her and her journey thus far. Thankyou again, Nicole
http://www.youtube.com/watch?v=Qbzj0qWvyT4
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Organizer

Nicole Smith 
Organizer
Figtree NSW
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