Fair chance in life for Leah

Hi my name is Stella. I am mum to 33 months old beautiful girl called Leah.

Leah was born in February 2020 just before Lockdown. Weighting in at 7Ib11 and just as cute as a button.

Leah has significant global developmental delay in all areas . She is non verbal and unable to walk or support her weight. She has hypotonia and over flexibility.

She has undergone MRI and a genetic blood test for Rett Syndrome . We were hopeful that we would get some answers as to why our little princess had these delays. The long wait for the results were a nightmare for us as parents but we kept our fingers crossed. The MRI came as Normal and Thankfully Rett came back as Negative. We still have no answers as to the reason for the Delay.

She is currently undergoing genetic testing and further medical assessments. She has complex needs and help with her developmental to achieve developmental milestones.

Sadly,beside all the issues described above Leah was refused access to NHS therapy including Boost, physio or OT.

Without access to the above services, Leah is set up for being behind in all developmental areas. She is left without a chance to have access to mainstream school , normal services and opportunities that are available to her peers.

She is also facing a world with no communication skills , no sensory integration and no means to move from place to place independently.

She face being misunderstood and isolated.

I am raising the founds to access private therapies for Leah to not only improve quality of her life but to also give her an opportunity for a fair start in life. I want to give her a chance and tools to move , communicate and enjoy the world around her.

The founds will be used for access to therapies including Occupational Therapy and Sensory Integration, Speech and Language Therapy and Physio Therapy.

The plan is to take her for whole summer to Malta where she is currently accessing a weekly OT therapy on a monthly bases.

This due to availability of therapist , affordability and the fact that we have family there who is able to provide us with accommodation to minimise the cost but maximise the therapies.

https://inspire.org.mt/our-services/multisensory-therapy/

We have also been made aware of a centre in UK that has lots of experience with Global Development Delay and we are hopeful that they could help Leah gain some independence. However, this therapy is not funded by the NHS so we are looking to fund a course of treatment to see if that would work. However a 12 month course costs approximately £6900.

We are currently awaiting house adaptations assessment and Leah was referred to wheelchair services . This means that we might require house adaptations bring installed or even a house move . Leah will also require a bespoke accessibility buggy.

We would also love to provide Leah with a sensory room as she loves sensory lights and this would help with her sensory integration.

Thank you so much for reading Leah’s story and a massive thank you from the bottom of our hearts if you are kind enough to donate, any amount would really help Leah to get the very best care and treatment that she needs and deserves.

If you would like to find out more about our journey to date please follow our blog: https://www.littlesteps.blog/

Thank you in advance for your help, support , donations and time

Thank you all for enabling my daughter to access services that will give her a chance

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