Ethan's mitochondrial disease fund

Ethan is a beautiful 4 year old boy who was recently diagnosed with mitochondrial disease. This is a progressive disease that causes organs to fail and many related health issues. His diagnoses list is constantly growing, but currently his biggest issues are with his lungs, muscles and brain. There is not a local doctor to treat this disease as it is not commonly diagnosed for kids, so he is followed by dr. Kendall in Atlanta GA. She is an amazing doctor, but not covered by health insurance so you can imagine how much it costs between her visit, and travel expenses for us. He is on a mito cocktail which is a mix of vitamins and supplements not covered by insurance which costs us hundreds of dollars a month. Unfortuantly this cocktail will only get more expensive as he grows.

Organizer

Sara Ashcroft
Organizer
Tonawanda, NY

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