Shortly afterwards, however, at the twins first check-up post hospital we got the news that Eric had tested positive for a genetic disorder that may indicate that he has Cystic Fibrosis. At that moment hearing those words I felt as if someone had punched me right in the gut and I wasn't entirely sure I would ever breathe again.
My precious little grandson....facing a devastating, life threatening illness. How could this be happening to us....we anticipated their birth with such joy and love and prayerfulness. The feelings of fear, dread and helplessness overwhelmed me but I am MOM....I have not only my grandson to worry about....I see the look on my daughter's face and I have to jump into "everything will be o.k. " mode. So I do...on the outside. But from that moment on, through all the tests, traveling to Boston, waiting for results, waiting for him to come out of sedation, waiting for....ANSWERS.....it has been the hardest thing I've ever faced in my life. To act as if it is all going to be o.k. when deep inside I just don't know.
And financially.....things are falling apart. His last test alone was an out of pocket expense of $735 plus a motel in Boston and all the time loss from work etc. So, since I can't fix him like I would give ANYTHING to do.....I decided to do this page in hopes of at least assuring he could get to the people who CAN!
Eric currently has growth hormone deficiency, insufficient pancreatitis, allergies to eggs, peanuts, fish, dust mites and who knows what else, the latest diagnosis of severe gastroparesis and the ever looming CF we still have no definitive answers for. We know even with all of this he is a lucky little boy. There are so many other things SO much worse we could be dealing with and we don't for one second lose sight of that. And....he is loved. He is loved beyond words by his Mommy and Daddy, his Pa and Ma, Grandma and Grandpa and "Guncle Matt"....and most of all his twin, Paige...who lovingly calls him "Ricket" because she can't say Eric :-) and HATES to be separated from him.
He is loved by his extended families, his church family and practically every person he's ever met. His winning smile, electric blue eyes and personality despite all the odds make him so easy to love.
We humbly ask for help paying for his medical bills, travel expenses and Dad's loss of wages/work so that we can continue to seek the very best of care for him today, tomorrow and for years to come if need be.
Thank you all from the bottoms of our very heavy hearts...
- Jennifer Miller
- Carla Renders
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