Epilepsy was a condition that had no meaning in our family until March 10, 2012. On that day we witnessed what would be the start of a long, hard, and scary journey. Our daughter Ella, who was 4 years old at the time, had her first seizure. This single moment changed our lives forever. This once foreign condition became something all too familiar to our entire family.
Our sweet Ella is now 7 years old. Over the years she has had thousands of seizures which lead her to endure multiple ambulance rides, hospital stays, medical tests and procedures, and blood draws. For the last 3 years we have tried everything to make Ella's seizures stop: multiple cocktails of medicines, MRI’s, Pet Scans, Spect Scans, EEG’s, Spinal Tap, X-Rays, etc. Epilepsy is a frustrating condition because after everything Ella has endured we still don't have a definite cause of her epilepsy and her seizures continue to be uncontrolled.
Ella suffers from several different types of seizures: generalized, tonic-clonic, partial complex, and absence seizures. Her seizures have been as short as 1-3 seconds and have gone as long as hours (status epilepticus). Ella began her life developing as a normal child, now, unfortunately, after so many seizures and years of them being uncontrolled, she has developmental delays and permanent changes to her brain. As a result, she will always need our care.
Despite all she has been through, Ella remains a happy, loving young girl. When times get tough, we all try to remind ourselves of her strength and we are thankful for every day she is a part of our lives.
We need to continue to raise awareness and funds to assist those who live with this challenging condition. Seizure disorders affect thousands of people and it does not discriminate against age, sex, or race-it can affect anyone at any time. Our hope is that one day there will be a cure and kids will be able to live a life without the fear of having a seizure.Prayers for Ella - Facebook page