Ellas familys extra medical expence

Ella was diagnosed with an extremely rare kidney disease called Cystinosis Fanconi Syndrome. It affects how her boby absorbes and uses nutrients. She needs specialized medications and suppliments that are in some places very hard to come by. Her mom works as a restaurant manager full time and dad has to work part time around moms schedule. Because of this money is   scarce. Ella is even in diapers when she sleeps becauce of this disease. Her family works really hard for it to be a normal life but they only have one car, one phone between her parents and her dad rides his bicycle to and from work. Ella and her family thank you for your help!!