This amazing young man is our son Dylan Edge, He is handsome, strong and the most beautiful boy ever.
Dylan was born with Pataus' syndrome, a rare chromosomal disorder which effected his heart, and his pancreas, he had epilepsy and suffered from a stroke when he was first born due to low blood sugars. Due to his complicated medical conditions he had to be tube fed for most of his life but despite all of this Dylan defied all of the odds, he walked, he talked, he could sign, he ran rings around all of us and wrapped every person he met tightly around his little finger. Dylan achieved so much in his short life from flying in a small aircraft, riding a steam train to see the boats, visiting each end of the country, climbing mountains to see castles and swimming in the sea, no matter what life threw at him he faced it head on and with the widest smile and a keen sense of adventure.
Sadly Dylan gained his angel wings on the 22nd August 2019, surrounded by his family after years of determination and fight.
many people have asked and expressed how they can help or contribute with the tough time we are facing. As a family we want to give Dylan the best send off and party he deserves.
I have set up this go fund me page for anyone who wishes to help us achieve this for Dylan.
I can not thank each and everyone of you enough for the amazing support and kindness we have received during the saddest and most difficult time of our lives and we are very very grateful for all of the offers of support we have been given.
Dylans family xx
*** Update ***
Due to the amazing response and phenomenal generosity I have increased the target amount, all funds will go towards the
funeral, party and dylans final resting place any excess funds will be donated and split between the three charities who were most involved with Dylan.
Claire house children's hospice
Ronald Mcdonald house alder hey,
Alder hey children's hospital. ❤️❤️THANK YOU ALL SO SO MUCH ❤️❤️