Daniel Davis Final Expenses
Donation protected
Daniel Andrew Davis is our loving, amazing son.
He was born in 1995 with bilateral cataracts which were removed when he was a baby, he now wears glasses for aphakia. Daniel was diagnosed with Lowe's Syndrome when he was one year old. Lowe Syndrome is a rare condition which affects the eyes, kidneys, and cognitive function. We have been able to attend several Lowe conferences. Daniel has severe behavioral difficulties due to his syndrome. He learned to read when he was 3 years old by watching Wheel of Fortune. He has learned to say the alphabet both backwards and forwards.
In February and March of this year Daniel was hospitalized with numerous kidney issues. He spent a total of 3 weeks in the hospital including two stays in the ICU. Along with his doctors, the palliative care team, and other health care professionals we came to the inescapable conclusion that Daniel is not a canidate for a Kidney transplant nor dialysis due to his behavioral difficulties and he would be unable to tolerate indefinite hospitalization. So with heavy hearts but knowing it was the right thing to do we brought him home where is in loving care of Mariposa Hospice and ourselves.
During his stays in the hospital he continually asked to be able to go back to school. Daniel attends Sandia High School for his final year of school. He loves going to school where he enjoys swimming, reading, numbers, and using the Promithian Board. Most of all he enjoys his teachers and the staff at Sandia High. He calls one of his E. A's "The Big Turkey".
He has attended a number of Joni and Friends disability camps and will only listen to one radio station KFLQ Family Life Radio. He enjoys the music and the teaching of Dr. David Jeremiah.
Daniel is a sweet loving young man. He has a natural honest charm and infectious laughter. Daniel is well loved by many, many people and has been all of his life.
Cynthia, one of his hospice nurses described him best by saying that he always lives in the moment. He has a sweet black lab he named Blackie. Even though he has physical, mental, and behavioral challenges, Daniel can light up a room and never has met anyone he didn't like. He has had numerous operations and procedures throughout his short life. No matter how stressful or difficult the procedure, he will often thank the healthcare worker when it is over.
Carrie Tingley Hospital in Albuquerque has been instrumental in providing much of Daniel's care for his behavioral health, orthopedic needs, and therapies and many other services.
Daniel is an avid NASCAR fan and has been for years. He received a NASCAR bedroom from Make-A-Wish Foundation when he was 11 years old which he continues to enjoy.
We have always tried to do what is best for Daniel. I hope that in these few paragraphs we his parents have conveyed what an amazing person Daniel is. We were never able to get life insurance for him because of his syndrome, so now we are asking for help with Daniel's final expenses. If Daniel has made you smile, laugh out loud or brightened your day in any way please consider giving toward his final expenses. A gift of any amount is greatly appreciated. Please share Daniel's story with all of your friends.
Thank you and God Bless!
Dennis and Sarah Davis
1 Thessalonians 4:13-18.
He was born in 1995 with bilateral cataracts which were removed when he was a baby, he now wears glasses for aphakia. Daniel was diagnosed with Lowe's Syndrome when he was one year old. Lowe Syndrome is a rare condition which affects the eyes, kidneys, and cognitive function. We have been able to attend several Lowe conferences. Daniel has severe behavioral difficulties due to his syndrome. He learned to read when he was 3 years old by watching Wheel of Fortune. He has learned to say the alphabet both backwards and forwards.
In February and March of this year Daniel was hospitalized with numerous kidney issues. He spent a total of 3 weeks in the hospital including two stays in the ICU. Along with his doctors, the palliative care team, and other health care professionals we came to the inescapable conclusion that Daniel is not a canidate for a Kidney transplant nor dialysis due to his behavioral difficulties and he would be unable to tolerate indefinite hospitalization. So with heavy hearts but knowing it was the right thing to do we brought him home where is in loving care of Mariposa Hospice and ourselves.
During his stays in the hospital he continually asked to be able to go back to school. Daniel attends Sandia High School for his final year of school. He loves going to school where he enjoys swimming, reading, numbers, and using the Promithian Board. Most of all he enjoys his teachers and the staff at Sandia High. He calls one of his E. A's "The Big Turkey".
He has attended a number of Joni and Friends disability camps and will only listen to one radio station KFLQ Family Life Radio. He enjoys the music and the teaching of Dr. David Jeremiah.
Daniel is a sweet loving young man. He has a natural honest charm and infectious laughter. Daniel is well loved by many, many people and has been all of his life.
Cynthia, one of his hospice nurses described him best by saying that he always lives in the moment. He has a sweet black lab he named Blackie. Even though he has physical, mental, and behavioral challenges, Daniel can light up a room and never has met anyone he didn't like. He has had numerous operations and procedures throughout his short life. No matter how stressful or difficult the procedure, he will often thank the healthcare worker when it is over.
Carrie Tingley Hospital in Albuquerque has been instrumental in providing much of Daniel's care for his behavioral health, orthopedic needs, and therapies and many other services.
Daniel is an avid NASCAR fan and has been for years. He received a NASCAR bedroom from Make-A-Wish Foundation when he was 11 years old which he continues to enjoy.
We have always tried to do what is best for Daniel. I hope that in these few paragraphs we his parents have conveyed what an amazing person Daniel is. We were never able to get life insurance for him because of his syndrome, so now we are asking for help with Daniel's final expenses. If Daniel has made you smile, laugh out loud or brightened your day in any way please consider giving toward his final expenses. A gift of any amount is greatly appreciated. Please share Daniel's story with all of your friends.
Thank you and God Bless!
Dennis and Sarah Davis
1 Thessalonians 4:13-18.
Organizer
Sarah Davis
Organizer
Albuquerque, NM
