My grandson Dakota was born with a rare disease (no cure). It is called Ichthyosis. Dr also says has TTD. He is on a lot of different prescription medication, prescription creams, lotions, eye and ear meds. Most of which insurance does not cover and what is covered is very minimal. He gets infections under the layers of the skin, anytime he gets cut it rips the skin off and then has to be very careful of getting infection. He has been having ear surgery since he was 2 about every 4 - 6 months. Which is because of the disease and now his eye specialist has been talking about having reconstructive eye surgery. With all his issues he is a very happy child and wants to do everything all other kids do, but has a hard time when he can not do all things other kids do, especially being outside once the weather gets warm, then needs to be in A/C. Because otherwise he will overheat and can have a heat stroke, he does not sweat. Each Shower/bath which is 2-3 a day consist of exfoliating his entire body which is painful for him and I know mentally painful for my daughter and son in law. But they have found through the organization a new tub called the microsilk tub, by Jason International. Jason International has been helping families of Ichthyosis to get this and with a discounted rate. Dakota's Dr has also recommened it. This is a great site to visit about it. http://www.jasoninternational.com/wellness/microsilkfundamentals.aspx
There are so many important benefits from this tub that he needs but the most important is that it gets these microscopic oxygen rich bubbles carrying ozone up passed hair follicles and the epidermis layer of skin to clean and hydrate. Which is eliminating staph infections for others. This will eliminate the painful exfoliation, it will help him to sleep along with other issues. The money raised is for the cost of the tub and for the plumbing co to install.
This is something Medically necessary for him. Many of the other children that have been able to get one of these, have been released from their ear Dr's and no longer need to have surgery.
Please, even if you are not able to donate, please share this page for other to see.