As most of you know, I am very ill. So sick I haven't been able to work in about 9 months. I spent 3 months last year unable to work as well. My disease has progressed rapidly and I spent about 6 of those months this year completely bed ridden. I am in pain every. single. day. Selling off what little inventory I have finished out at the cruise ships has helped. (Thanks to my friend Jeanne who has taken my work out there to sell for me as I can not). But with off season, things have become unmanageable.
I have no health insurance. A lot of us here on St. Croix suffer from this. Currently my medical bills yearly run us between $10[phone redacted]0 a year. This includes, labwork, medications, Dr. Visits, and once a year travels stateside as there is no Rheumatologist (my primary specialist for Mixed Connective Tissue Disease) here on island. To say we are in a hole is putting it lightly. We are being buried alive over here and I see no other way out.
I am filing for Social Security/Disability this year. It has been months. It can take years for this to take effect, and that's if they approve me. If not, I must appeal, which will require a lawyer and I will fight until I get it.
I am currently taking chemo medication along with a lot of others, immunosuppressants, so I live in a bubble so as to not get sick. The side effects of these meds are cancer, or infections that will end up putting me in the hospital or killing me. This is serious. I'm coming to terms through the grieving process of how serious it is. If I get on SS/Disability, in two years I will have Medicare. So it will still be hard to make it financially until that takes place. We don't know what to do. We have a new home to pay for, this home and my view of the ocean is what has saved my life for it gives me some joy every day while I suffer painfully through this disease. I see what it is doing to my husband and it's killing me.
Something has to give. And that's why I'm here. I need your help. Even $5 or $10, $20 or $50 can make a LIFE CHANGING gift, can allow us to continue to let me fight this battle. I don't want to give up. I don't want to die. But I need the medical care necessary to continue living.
Please, friends, I know how much we are all hurting right now. But really a few dollars even, can help us get through this. I love you all, you have been AMAZING support systems for me, my family really. I have tapped my parents out. They are retired, they want to help, but they no longer can. Brad has done the same with his mom. This is our last hope.
I thank you for helping me and saving my life,
God bless you all,
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