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Corbin's AFM Awareness Campaign

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On October 8th, 2-year-old Corbin Cardone woke up unable to bear weight on his legs. The next day, an MRI confirmed inflammation in Corbin's spinal cord. Corbin was diagnosed with a rare disease called Transverse Myelitis (TM), and possibly Acute Flaccid Myelitis (AFM)- a related, yet even rarer and potentially more dangerous disease- and he was admitted to McClane Children's Baylor Scott & White Hospital in Temple, Texas. During a nearly 2 week admission, Corbin received high-dose steroids as well as 5 rounds of an intense treatment known as plasmapheresis, or PLEX, which removes the antibodies in a person's plasma. All of this quick care was made possible by the incredible dedication of Corbin's neurologist and care team at McClane's, as well as their direct communication with a leading medical professional in Dallas, Dr. Benjamin Greenberg, who specializes in TM and related diseases. During the course of the treatment, Corbin regained his ability to walk, run, and play and was discharged with a great prognosis for his future!

Corbin's parents, Elizabeth and Scott, still had many questions to be answered. They scheduled a follow-up appointment with Dr. Greenberg, the specialist who recommended Corbin's intense treatment that led to his amazing recovery. This consult confirmed that Cobin had in fact battled AFM. This diagnosis made Corbin's complete recovery even more remarkable! Corbin is one of a small percentage of people diagnosed with AFM who has recovered fully. Also in awe of Corbin's recovery, Dr. Greenberg recommended the Cardones return home to normal life and come back for a follow-up visit next summer. 

Corbin's recovery is a gift from God, as was his quick diagnosis and subsequent treatments. The Cardones feel passionately about increasing awareness of this potentially debilitating, sometimes fatal, condition, and equipping parents with knowledge to advocate best for the health of their children. This fund is set up to support both the Cardone family specifically, and raise awareness and money for the Acute Flaccid Myelitis Association. The funds will first be applied to the Cardone's remaining medical bills, and any excess will be given directly to the Association to support research of the disease and help financially serve other families who have been affected by AFM.

To read more about Corbin's story, visit this Baylor Scott & White blog post.

To learn more about AFM, visit the Acute Flaccid Myelitis Association website.

Organizer and beneficiary

Beth Davis
Organizer
College Station, TX
Elizabeth Cardone
Beneficiary

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