Colin Lawlor Journey Fund COLINSTRONG

Colin’s journey began in the spring of 2019.  He has already endured surgery, months of rehab to relearn walking, talking, and eating.   Colin had continued to get MRI’s every 3 months since his first diagnosis in 2019.   Fast forward to Easter Monday of 2021 when he went for his routine MRI.  Unfortunately, it wasn't the news that we wanted to hear. After speaking with the surgeon today, they're unsure the status of this new tumor. Once they have the biopsy from the surgery, that will take place next month, they will have a better understanding as to the road Colin will be traveling. His previous tumor was a pilocytic astrocytoma which is considered a slow growing low-grade tumor. The difference with Colin's tumor is he has a common gene known as a BRAF gene however his mutation is so rare that he is the only one with it! The oncologist called it "his own personal mutation", meaning they don't know of anyone else with it. They don't know anything about this mutation or how it will act or react. The surgeon is going to do a craniotomy & remove the tumor. He is unsure if the tumor has grown back as a higher grade more aggressive tumor or if the the new tumor is a different type of tumor which is more aggressive. If it returns again, he will need to start chemotherapy immediately. We are praying we don't have another 3 month stay. They don't know if he will suffer the severe PFS again and not be able to walk, talk & see. He will need more rehab either way. Please keep Colin in your prayers and share for more prayers. Colin is once again about to fight another monster no child should ever have to fight. ❤️