Cj’s Poppy Run raising awareness for Epilepsy
Donation protected
My name is Cj and I am 12 years old. I want to raise money for the Children’s Appeal at Ipswich Hospital and to raise awareness for Epilepsy which is something very close to my heart.
My little brother Daley, who is 7, has a rare syndrome called Koolen De Vries ( see link below ) Epilepsy is a part of this syndrome.
Daley has suffered with seizures since he was 2yrs old. Some lasting 5mins and some last up to 3hrs. He’s been on life support and has been in and out of hospital for most of his little life and I just feel so sorry for him.
My aim is to run 1.2 miles (from my grandparents house to my home) per day for 7 days dressed as Poppy from Trolls which is one of Daley’s favourite films.
Life has been a bit hard for everyone these passed few months but been extra hard for Daley as he has been having more and more seizures and at the moment, medication is not working. Fortunately, Daley is such a happy boy and bounces back after every seizure.
I want to help Daley and other people suffering from this awful condition and hopefully one day we can find a cure for Epilepsy?
I will start this on Friday 10th July.
Please support me if you can?
If you see me on your travels, give me a hoot :)
Thank you for taking time to listen to our story.
https://kdvsfoundation.org/what-is-kdvs/
My little brother Daley, who is 7, has a rare syndrome called Koolen De Vries ( see link below ) Epilepsy is a part of this syndrome.
Daley has suffered with seizures since he was 2yrs old. Some lasting 5mins and some last up to 3hrs. He’s been on life support and has been in and out of hospital for most of his little life and I just feel so sorry for him.
My aim is to run 1.2 miles (from my grandparents house to my home) per day for 7 days dressed as Poppy from Trolls which is one of Daley’s favourite films.
Life has been a bit hard for everyone these passed few months but been extra hard for Daley as he has been having more and more seizures and at the moment, medication is not working. Fortunately, Daley is such a happy boy and bounces back after every seizure.
I want to help Daley and other people suffering from this awful condition and hopefully one day we can find a cure for Epilepsy?
I will start this on Friday 10th July.
Please support me if you can?
If you see me on your travels, give me a hoot :)
Thank you for taking time to listen to our story.
https://kdvsfoundation.org/what-is-kdvs/
Organizer
Leanne Mann
Organizer
