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Child allergic to sunlight

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I am trying to raise money so our daughter can remain in school. We need some kind of UV sun canopy we've had several quotes of £10,000 to make her play area UV safe.

My daughter 4 year daughter Ellen has been under Great Ormond Street since the age of 18 months yr old, she has numerous health issues including a high platelet count -meaning her blood is to thick and is at risk daily of a stroke or heart attack.
She also has a very low immune system so much so she has been taking azithromycin for the past 3 years ...5ml a day for 3 days then 10 days off then 3 days on.
We as a family shielded for an entire year to keep her safe it was tough but the right thing to do.
Since starting school her immune system has taken a battering even though we managed to get her in a small village school with only 16other children.
Because of her immune system and being around other children her condition has worsened to the point where her body feels like everything is an attack she has now become allergic to sunlight.
You might ask why is she in school?

She loves school and loves her friends....
we want her to have a normal childhood.
With the money the school can install a large sun canopy that will allow her to join her friends at break and lunch time. 


She has also recently become allergic to latex, silicon and polyester
Any questions please email me x

Organizer

Aleaze Talbott
Organizer
England

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