Carmine’s LGS Journey

 Carmine was originally diagnosed with a form of epilepsy known as Infantile Spasms. After failing several first line treatments, his diagnosis has quickly progressed to Lennox-Gastaut Syndrome (LGS), a rare and progressive form of epilepsy characterized by recurrent seizures and impaired intellectual and physical development, including significant developmental delays and regression. LGS may eventually cause Carmine to lose the ability to walk and not develop the ability to speak.

 Carmine’s mommy and daddy, Loriana and Paulie, have made a commitment to give him the best care and outcome possible with this devastating diagnosis. Mom and dad will do anything for their little angel, having to continuously take off from work to care for Carmine and be present at countless appointments with his medical team. The family will need a Safe Crib for children with special needs, as well as a monitoring system and medical equipment to help prevent him from injuring himself when he is experiencing myoclonic jerks and drop attacks.

 This family wants nothing more than for Carmine to live the happiest and most normal life a child can have, including being able to play with his older sister, Daniella, whom he absolutely adores. They are hoping for a miracle, but are realistic that Carmine’s recurring daily seizures and the special services he receives may continue throughout his childhood and into adulthood. Please consider making a small donation for Carmine’s medical expenses that are slowly but surely building up.