Help Fund the Cure for WWOX Diseases

Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further, 
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.

Please note that the WWOX Foundation is an Australian based charity, because the charity works and operates in Australia the campaign will be collecting money in Australian dollars. When you donate to GoFundme your card will be charged the equivalent amount in your local currency. To verify the amount you want to give you can simply enter it here

For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

Donations

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  • Haya Green 
    • $40 
    • 23 hrs
  • Kentaro Ogino 
    • $100 
    • 1 d
  • Andy Haley 
    • $250 
    • 1 d
  • Anonymous 
    • $20 
    • 2 d
  • Anonymous 
    • $20 
    • 2 d
See all

Fundraising team: WWOX Fundraising Team (10)

Karla Sanjines 
Organizer
Raised $12,380 from 16 donations
Waterloo, NSW
WWOX FOUNDATION LIMITED 
Registered nonprofit
Donations are typically tax deductible in Australia.
Learn more
Stephen Pratt 
Team member
Raised $4,359 from 17 donations
Johann Mentz 
Team member
Raised $3,020 from 14 donations
Charlotte Gail Lloyd 
Team member
Raised $1,073 from 13 donations
Karen M Pratt 
Team member
Raised $493 from 5 donations
See all
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