This amazing little angel is my daughter Gabriella. Gabreilla is a very fun and compassionate 2 year old. Just like every other child her age she loves to play, read books, and spend time with her family. The one thing that makes my Gabby special is that she was born with a genetic muscular disease called ' Spinal Muscular Atrophy'. SMA affects Gabbys muscle function and development causing her not to be able to walk, stand, or bear weight. At times it breaks my heart for her to not be able to run around with her friends or family. When I have those moments of sadness God reminds me of how blessed I am to be this little girls mommy. She is so amazing and filled with so much love,and it teaches me that we dont always need to be a whole person on the outside to be a whole person on the inside. Shortly after Gabby was diagnosed we did our research and found an organazation called Families of SMA. FSMA holds an annual conference for families affected by the disease. We attended our first conference last year, and the first thing that stood out to us was seeing children not much older than Gabby zooming around us in their power chairs. As soon as we got home from that conference we made it our mission to get one for Gabby. Within a year medicaid gave Gabby her first power chair, fully paid for. I dont get the chance to work as much as I like because Gabby needs total care. I am so blessed that I get to spend as much time with her as I do, but unfortunatly it has caused me to not be able to afford some of the expenses that arise for a child with special needs. In our home we are driven by our love for 'Team Gabby'. Myself, her father, and her grandparents do all that we can to show our Gabby just how much she is loved. We are not afraid to make sure Gabby knows that even though God has made her differently than us, he loves her very much and she is so very special. I thank God everyday for blessing me with my Gabby. SMA has been a challenge for all of us in the family, but no matter what we may face we do it all for our Gabby because we love her so much. It has been very hard for me to ask for help, because I already rely on so much of it to take care of Gabby. I am always seeking pearls of wisdom from other families who have children with SMA, and the most important thing they remind me is that I just cant do this alone. I pray everyday to just get me through the day, and for God to please let my Gabby live a long, happy, and healthy life. He has blessed me more than I will ever know. When I became a mom I had no idea what life had in store for me. The one thing I do know for sure, is that I wouldnt change a thing. Many people say that God only gives things to us because he knows we can handle it. I dont know if that is his intention, but I do know no matter what he does give us we can get through it with his unending love.
We are so very blessed to have Gabbys power chair, but our current challenge is finding the means to transport it. Gabby is still learning how to drive it and we hope to be able to get her accustomed to using it everyday. It will be her means of mobililty and freedom. Which she hasnt had much of since she cant walk. I currently own an older model nissan altima, that does not have the capability of transporting her chair. We are in need of a van that could be adapted for easy transport. Our goal is to raise the funds to be able to purchase a newer model van that we can have adapted with a ramp for her chair. I look forward to the day that we can go places together with her chair, and she can explore on her own away from mommy just like any other kid her age. I am reaching out my heart to anyone that would be able to help us raise these funds. I am a single mom working as hard as I can to do what I need for my child, But I cannot do it alone.
Love and prayers to all of those who have taken the time to read this and possibly help our cause.
Love, Team Gabby
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