Life Saving MS Treatment For Our Mum, Lynda
Donation protected
As many of you know this is a very personal cause to us and those around us. Our mum was diagnosed with Primary Progressive Multiple Sclerosis (PPMS) 7 years ago, and since then her illness has progressed rapidly. We have had to watch our mum struggle with the disease, and battle with pain every day. We feel that it’s time to give back to our mum, and everything that she has done for us over the years.
Multiple Sclerosis (MS) is a disabling disease of the brain and spinal cord. For MS sufferers, the immune system attacks the protective sheath (myelin) that covers nerve fibres and disrupts the flow of information between the brain and body. This results in muscle and nerve damage, ongoing pain and fatigue. Primary Progressive MS is seen as one of the worst types of MS where this nerve damage and pain can continuously grow and once progressed, will never recover.
For our mum, the symptoms of MS now prevent her from carrying out everyday tasks and activities. In particular, it prevents her from walking any distance without assistance, having function of her left hand and arm and thinking cognitively due to fatigue. This means that she has had to give up her much loved job as a nurse, hobbies, gym classes and most of the things that made her happy.
There is currently no cure for MS and the NHS do not provide any treatment (though they have the means too) for Primary Progressive MS patients, only medication to suppress the ongoing symptoms of pain. The treatment known as HSCT (Haematopoietic Stem Cell Transplantation) will require her to be in Russia for 30 days, undergoing chemotherapy and bone marrow transplant where stem cells are harvested and re-implanted into the body. Although this treatment will not help to regain any lost function, we’re using this as a last resort in an attempt to stop the progression of mum’s MS.
We know that our mum would love to watch her family grow, dance with us at our weddings, walk with her grandchildren and continue to live life to the fullest. This treatment is our only chance of that. The cost of the treatment is £45,000 and with all the will in the world we cannot afford this on our own. Anything that you can donate will help improve not just the life of our mother, but that of the whole family and we are extremely grateful for any donations to this cause.
Thank you for taking the time to read this.
Multiple Sclerosis (MS) is a disabling disease of the brain and spinal cord. For MS sufferers, the immune system attacks the protective sheath (myelin) that covers nerve fibres and disrupts the flow of information between the brain and body. This results in muscle and nerve damage, ongoing pain and fatigue. Primary Progressive MS is seen as one of the worst types of MS where this nerve damage and pain can continuously grow and once progressed, will never recover.
For our mum, the symptoms of MS now prevent her from carrying out everyday tasks and activities. In particular, it prevents her from walking any distance without assistance, having function of her left hand and arm and thinking cognitively due to fatigue. This means that she has had to give up her much loved job as a nurse, hobbies, gym classes and most of the things that made her happy.
There is currently no cure for MS and the NHS do not provide any treatment (though they have the means too) for Primary Progressive MS patients, only medication to suppress the ongoing symptoms of pain. The treatment known as HSCT (Haematopoietic Stem Cell Transplantation) will require her to be in Russia for 30 days, undergoing chemotherapy and bone marrow transplant where stem cells are harvested and re-implanted into the body. Although this treatment will not help to regain any lost function, we’re using this as a last resort in an attempt to stop the progression of mum’s MS.
We know that our mum would love to watch her family grow, dance with us at our weddings, walk with her grandchildren and continue to live life to the fullest. This treatment is our only chance of that. The cost of the treatment is £45,000 and with all the will in the world we cannot afford this on our own. Anything that you can donate will help improve not just the life of our mother, but that of the whole family and we are extremely grateful for any donations to this cause.
Thank you for taking the time to read this.
Fundraising team (2)
Popsi Hogg
Organizer
Scotland
Adam Reid
Team member
