Stem Cell Treat for Bulbar palsy
Donation protected
I was a pilot for American Airlines. In Aug 2016 I had a fumes event. In December I noticed I was slurring some words after a drink or two, so I had a brain MRI in Feb 2017. My speech continued to deteriorate to the point where I could not fly, that was June 1st.
On June 1st I had an appointment with a neurologist from the Mayo Clinic Jacksonville, Florida. He ran an EMG test and diagnosed me with Bulbar Palsy, a Neuromuscular Degenerative disease that affects speech and swallowing. Currently I have only the Upper motor neuron , involvement, otherwise it would be ALS. It has progressed to the point where my family can no longer understand what I am saying.
There is no cure and at this point I just want to prolong my quality of life. I have some swallowing issues, and at the speed of the disease I will likely need a feeding tube in a month or so. Next it will affect my breathing.
So, if stem cell treatments can give me 6 to 12 months more time, to see my second grandchild be born in January, I would like to have it.
The cost is 20k, for the treatment and that does not include the cost of the hotel and transport. The whole process takes 17 days.
https://stemcellthailand.org/therapies/motor-neuron-disease-mnd/
I am planning on going on October 18th, my Dad is paying for the treatmeant and airfire and I would like to be able to pay him back.
My wife of almost 30 years, says she misses my voice and talking to me. We still have faith, in a miracle healing, but are living one day at a time.
On June 1st I had an appointment with a neurologist from the Mayo Clinic Jacksonville, Florida. He ran an EMG test and diagnosed me with Bulbar Palsy, a Neuromuscular Degenerative disease that affects speech and swallowing. Currently I have only the Upper motor neuron , involvement, otherwise it would be ALS. It has progressed to the point where my family can no longer understand what I am saying.
There is no cure and at this point I just want to prolong my quality of life. I have some swallowing issues, and at the speed of the disease I will likely need a feeding tube in a month or so. Next it will affect my breathing.
So, if stem cell treatments can give me 6 to 12 months more time, to see my second grandchild be born in January, I would like to have it.
The cost is 20k, for the treatment and that does not include the cost of the hotel and transport. The whole process takes 17 days.
https://stemcellthailand.org/therapies/motor-neuron-disease-mnd/
I am planning on going on October 18th, my Dad is paying for the treatmeant and airfire and I would like to be able to pay him back.
My wife of almost 30 years, says she misses my voice and talking to me. We still have faith, in a miracle healing, but are living one day at a time.
Organizer
Ronald Weiland
Organizer
Lake Worth, FL
