Jonah's Journey

Jonah was born with a very rare genetic condition, as of right now he is the only one in the world with it. Jonah has a small spot in chromosome 20 missing and a partial trisomy 16  (3 of chromosome16). This has lead to many health issues.  He struggled to stay alive spending  twelve weeks in the NICU in Denver when he was born. Jonah was not expected to survive the first night.  He is now 3 years old.  He has had open heart surgery, jaw surgery, and three eye surgeries.  Jonah is not able to walk or fully open his eyes. He wears oxygen continually and eats through a g-tube.  He has never received home health care and comes from a very supportive family.  Jonah is transported to Denver 6-7 times a year from Casper, will eventually need a wheelchair,  and has many more surgeries in his future. Although limited, this little boy has not waivered on his zest for life and becoming aware with the world around him.  Jonah's family is looking to purchase a wheelchair accessible vehicle and facing mounting medical expenses.