Bentlee's Medical Fund

Our son Bentlee was born with a rare syndrome called Russell Silver Syndrome (RSS).  With RSS come many challenges because children with RSS are prone to many different health issues from diabetes, under developed kidneys and lungs as well have many different heart issues.  They also have issues with weight gain and maintaining the weight.  Many RSS children like Bentlee have issues with legs and arms being longer than the other. Bentlee's right leg is a full inch longer than the left and that will reacquire special care also. The care of a child with RSS is overwhelmingly high from daily maintenance of nutrition to growth hormones needed and Gastric G-tube that our medical insurance doesn't completely cover. The endocrinologist that specializes in Russell Silver syndrome is out of New York and we live in Texas and the cost of this trip is also more than we can afford. Our mission is to get the very best care for Bentlee. Thank you for your support and soon we will be starting a facebook page to show Bentlee in his growth and adventures.