Let me first introduce my best friend and her family, Sam and Andrea have a beautiful blended family. Dexter, Sophia, Ellie, Jude and baby girl makes 5. Sam and Andrea found out in January that they were expecting their 2nd child together due in October, excitement filled their home as they shared the news with family and friends.
But July 1st they received devastating news about their little girl. She was diagnosed with Trisomy 13 with almost no chance to survive. She has brain, heart and kidney malformations. They also received news that heart heart is located on the opposite side of her chest laying on its side. Currently the family is waiting for a few more tests but have been told to prepare for the death of their little girl. (*Definition of Trisomy 13: also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life.)
I am asking for prayers and support for this family. We know God is bigger than what Drs. say and hope for a miracle. This family has fallen on hard times this past year and know that the medical and funeral costs will be very hard for them. God has asked us to Bless those in need. My hope for them is to enjoy any time that they get with their daughter without worrying about bills, medical expenses etc... Please help if you can, God Bless you! Please feel free to contact myself if you have questions.
Feel Free to follow baby Erwin's story told by her momma: http://miracleforbabyerwin.wordpress.com
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