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Baby Zaya's New Heart

$20,828 of $20,000 goal

Raised by 183 people in 3 months
Created May 7, 2019
Fundraising Team
on behalf of Justin Biel
This is the story of Zaya Rose Biel. My good friends, Justin and Rose Biel’s, first child.  Zaya is a beautiful little girl who desperately needs your love and support. She has come here to teach us all about acceptance and unconditional love, but first we have to get this little girl healthy.

Justin and Rose Biel gave birth to their first child, Zaya Rose, on January 1, 2019 at 5:21AM at Heart of the Rockies Medical Center in Salida, CO. A few hours after a beautiful natural birth, Zaya’s oxygen level dropped and she was rushed on Flight for Life to Children’s Hospital Denver.

They sat in the Children’s Hospital Neonatal Intensive Care Unit for days waiting on results. When they got them, their lives changed for the second time that week.

The doctors told them two facts about their daughter that knocked the wind right out of them:

Zaya has a chromosomal abnormality called Trisomy 21, which is commonly known as Downs Syndrome.

Zaya has a congenital heart defect called AV Canal Defect. This means she has a large hole in the center of her heart in place and cannot regulate the flow of blood and oxygen in her body.

Zaya is going to need heart surgery before she’s six months old.

After a lot of tears wondering what they could have done differently, what this means for their baby girl and countless questions about what to do next, they resolved to simply love their daughter and started fighting to get her healthy.

The past months have been an all-encompassing journey as they try to understand her condition and make the best decisions to help their little girl. Currently, Zaya is undergoing an intensive treatment plan that includes acupressure, infant chiropractic, naturopath medicine, energy healing, occupational therapy, speech therapy and lactation, in an effort to give her the best shot at a high-functioning life. Little Zaya has also been on oxygen since birth to balance her heart condition.

On May 20th, after a long battle with insurance to find Zaya the best doctor, the family is headed to Children’s Hospital Los Angeles for her open-heart surgery.

This has been a whirlwind for Mom and Dad, but little Zaya has passed gracefully through her daily struggles, teaching us all more about love, compassion and strength with every passing hour. We are so grateful to have her in our lives and feel confident that her surgery is going to be a success.  

Justin and Rose have done their best to get Zaya’s treatments, medical needs and surgery covered, but a lot of the proactive steps they are taking to help her live a high functioning life are simply not covered by traditional insurance.

If you can find the compassion to help Justin, Rose and Zaya on her healing mission, I would be forever grateful. In addition to donations, please send little Zaya a prayer on May 20th for a successful surgery. 
 
All contributions raised from this campaign will be used for the critical resources needed to ease Zaya's path toward recovery and ongoing therapy and treatment.  

With deep gratitude and love, thank you for your prayers and support.
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Hi Everyone,
Here is our final update on our Go Fund Me Campaign as we are closing it out...
We are back in Colorado and Zaya is thriving. Aside from a few setbacks (which she is overcoming gracefully), she is strong and healing! Zaya's heart surgery was a success and her incision is more beautiful than we could have dreamed. Colorado altitude has brought on a new challenge of lung pressure, but we are working with our Medical team to understand more and give her the best care. She is healing and we are working on her updated therapy program. The program is a blend of nutrition, energy healing, eastern and western medicine. We are fortunate to be able to create the program we have created as we are not seeing many developmental delays and she is even advanced in some motor skills. With the therapy treatments we are incorporating, our goal is to help her progress in the areas where she is struggling and to proactively keep 'possible' future heath problems associated with her diagnosis away...
In essence, as long as she shows us she is ready, we will give her the tools and resources to break through any glass ceiling or social stigma. We are so proud of our baby girl - she has already brought us closer than we've ever been to our family, brought happiness to anyone who meets her and inspired others to appreciate their health and life more.
Thank you for your prayers, healing energy and donations * they have been such a blessing * turning a time of stress into beauty.

With love,
Justin, Rose & Zaya
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Hello Team Zaya! It’s been overwhelming to see the outpouring of support from all our friends and family. Thanks to everyone who has sent along prayers, good vibes and donations in support of our little angel. We couldn’t have gotten through this week without you.

We wanted to share a quick update on Zaya’s progress to keep you all in the loop.

Overall, Zaya’s heart surgery was a success! She is currently recovering in the Children’s Hospital Los Angles Neonatal Intensive Care Unit. Although it’s been a challenging recovery lil’ Z is now breathing on her own and the surgeons feel that the repair to her valves was near perfect.

She will be in the NICU for a few more days and then transferred to a lower-level unit until the middle of next week, at which point we hope we can take our baby home.

We’ll keep you updated as her condition progresses. We love you all!

Sincerely,

Rose, Justin & Zaya
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$20,828 of $20,000 goal

Raised by 183 people in 3 months
Created May 7, 2019
Fundraising Team
on behalf of Justin Biel
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