Haven's Corrective DOC Band

Hoping by making a Go Fund Me page will help with all the expenses my niece and sister is going through. Please read her story and help with what you can. EVERY bit helps :)! Our daughter Haven is now 4 months old. Around 2 months old we started noticing some facial asymmetry that was being caused by her torticollis. We started Physical Therapy/ Chiropractic treatment immediately to correct the torticollis and prayed this would strengthen the muscles and help with her facial asymmetry and the misshaping of her head. This was not the case. We took Haven to Cranial Technologies in Atlanta for an evaluation for a DOC Band. Upon evaluation, the clinician said that she is definitely in need of a DOC Band to correct the shape of her head and to fix her facial asymmetry. Haven has moderate Plagiocephaly causing her left side of her face to sink in and trouble opening her left eye FULLY. Here jaw is off center and one of her ears is higher than the other. The clinician also told us, that because Haven had problems in MULTIPLE areas, that insurance would most likely DENY her claim..... This was incredibly confusing and frustrating as any parent can relate to. We felt hopeless and have gone through every channel and pre-treatment possible before coming here in hopes that with your generous help, Havens story while also raising awareness that we will be able to get the treatment that she needs so desperately. The clinician explained that the insurance company only looks at one measurement, and if that ONE measurement doesn't meet their standards, the claim is to be denied. So we crossed our fingers, and waited for the phone call, hoping, and PRAYING that they would approve treatment for our baby girl. Two weeks later we received the phone call we hoped would be good news. Sadly it was the call we had been dreading. DENIED!!! This life altering treatment is not only of utmost importance, but Very time sensitive. After the age of 18 months Havens cranial plates will fuse and no longer be able to be re-shaped by the DOC Band. The younger the child is when they start treatement, the faster and better the results. Please help us give our daughter what she needs to correct her facial asymmetry and head shape. Every little bit helps. Thank you from the bottom of our hearts.... After all the medical expenses are paid for. I would like to donate the left overs to another family in need to help another loved one. Thank you to everyone that donates or even shares. It's very much appreciated!

Donations

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  • Thyles Cloud 
    • $100 
    • 35 mos
  • Scott Cloud 
    • $25 
    • 36 mos
  • Anonymous 
    • $25 
    • 36 mos
  • Ponda Anderson  
    • $25 
    • 36 mos
  • Michelle Swanson 
    • $50 
    • 36 mos
See all

Organizer and beneficiary

Allisha De' Leon 
Organizer
Wyandotte, OK
Allisha Deleon 
Beneficiary
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