My beautiful niece Cour’tarlor is an 11 month old baby girl with a limb difference. Learning that your baby has a limb difference can leave parents in a state of disbelief and shock. Kristie (Cour’tarlors mum) learnt this news during a routine ultrasound. After the initial shock came the feeling of sadness, grief and often guilt. Limb difference is an overarching term used to describe any child or young person born with a congenital limb difference or who acquires limb loss after birth.
Cour’tarlor recently had her foot amputated at Westmead Children’s Hospital. The surgery went to plan and now she is at the beginning of a number of years of continuous medical treatment, her family live 5 hours away in Port Macquarie from the medical specialists she is seeing at Westmead Children’s Hospital. Her family are concerned about the cost involved and the stress.
We understand that Cour’tarlor can lead an independent and successful life with a limb difference. Cour’tarlor will use a prosthetic limb. During her many hospital stays Cour’tarlor will be receiving numerous medical assistance where she will continually over the years meet with a team of health care providers who will work together to support her: The Paediatric Rehabilitation Specialists/Consultants who will provide specialist care and coordinate the team and clinic to help the family to set goals and decide what’s important in Cour’tarlors life. Physiotherapists who will design programs to assist her to meet her mobility goals, develop programs to suit her ability, provide advice to help to look after her residual limb and to assist with activities to improve balance, flexibility and strength to help with mobility. Prosthetists who over many years will assess her to decide which prosthesis will best suit her requirements and mobility goals, they will design, fabricate and provide her with their prosthesis and will see her for regular reviews and adjustments and update her prosthesis as she grows and develops. As Cour’tarlor grows the prosthesis will need to be adjusted. When it can’t be adjusted any further, a new one will need to be made. Generally she will need to attend a review appointment with the prosthetist once every six months. Occupational Therapists who will help her to achieve independence by providing assistance with learning activities of daily living, arrange access to assistive devices if required, provide specialist care to Cour’tarlor with limb loss – training her to use her limb prosthesis, create goals and action plans and help her to achieve them and importantly liaise with school in regard to practical issues like accessibility. Social Workers will provide the family with confidential counselling assistance if needed, they will provide emotional support, and help the family to manage the adjustment relating to limb loss.
I'm trying to help raise money for Cour’tarlor as she continues to have ongoing treatment. I have set up this Go Fund Me cause for Cour’tarlor and I appreciate your help by making a donation.
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