Baby Abigail Grace

September 22, 2018 - Update:

THANK YOU TO EVERYONE WHO HAS DONATED TO ABBY'S GOFUNDME CAMPAIGN. 
We successfully reached our original goal of $10,000 in just a little over two weeks. Your kindness, generosity, support, love and prayers for Baby Abby and the Lamar family is overwhelming.  

Because expenses continue to pile up, please continue to share the Campaign. This will be a long haul. 

To stay near Abby, her mom has rented an apartment in Philly, and is in the process of applying for a PA nursing license. The plan is for her to work an occasional shift in Philly to help with bills and still be able to see Abby daily.

Baby Abby continues to fight to survive. In some respects Abby has improved, while in some other areas her condition is worse. Since Abby’s surgery on 8/28/18, her edema generally improved from the neck down. Her chest, arms and hands have new definition, and she can even bend her arms to get her hands to her mouth, an important Normal Baby activity. However, Abby has a hygroma, a large cyst on the left side of her neck, which is getting much, much bigger, such that her head is being forced to the right. The hygroma also appears to have a hemorrhage into it, contributing to both the increase in size and to Abby being anemic.  Please continue to visit the Local Care Midwifery (LCM) Blog: http://localcaremidwifery.com/ blog for updates regarding Abby's condition.


As always, your support (financial or otherwise), good thoughts, prayers, brilliant ideas and miracles are greatly appreciated.



September 3, 2018

Abby is a warrior! Born on July 30, 2018 at Albany Medical Center (AMC), Abby has spent every day of her life in neonatal intensive care, first at AMC, and now at the Children's Hospital of Philadelphia  (CHOP). Minute-by-minute, day-by-day, Abby is fighting for survival, normalcy, and to make it home to her mom and dad, and her three-year-old big brother, Jack. 

Abby was born with a lymphatic disorder (lymphatic leak). Abby not only has an unusual lymphatic system, but a very fragile one (the vessel walls are very thin and friable making connections to veins difficult). This means that Abby's lymphatic to venous drainage is not working properly causing pervasive lymph drainage issues. Details about Abby's condition, progress, and treatment attempts/plans are updated regularly on the Local Care Midwifery (LCM) Blog: http://localcaremidwifery.com/ blog. 

Abby’s situation has traditionally been one with very poor prognosis. However, a team at CHOP that specializes in lymphatic disorders has recently begun to have some success treating children like Abby, which is why her parents  (Leslie and John Lamar) had her transferred there. The treatments take a long time and it is likely Abby will be at CHOP for several months. 

Leslie has temporarily relocated to Philadelphia to be close with Abby. John must care for their son Jack, who is home in Albany, NY, but travels frequently between Philadelphia and Albany. The extra housing and food expenses add up quickly. 

Since so many of Leslie and John’s family, friends and acquaintances have been asking how they can help, Leslie and John have agreed to the creation of this Campaign to help offset living expenses they are incurring as a result of Abby’s treatment at CHOP.  If you want to help, but feel helpless, this Campaign offers a way to do just that. Any amount would be appreciated and will be used to help alleviate the burden of these extra financial expenses. When this is over, and Abby is home, healthy and happy, with her mom, dad and brother, remaining funds, if any, will be donated by the Lamar family to a cause related to Abby’s condition.  

Your support (financial or otherwise), good thoughts, prayers, brilliant ideas and miracles are greatly appreciated.
  • Richard & Fleur Hynes 
    • $100 
    • 33 mos
  • Jinjing Zhao 
    • $50 
    • 34 mos
  • Kaitee Page 
    • $20 
    • 35 mos
  • Teresa Stupski  
    • $125 
    • 35 mos
  • Parke and Tricia Brown 
    • $50 
    • 36 mos
See all

Fundraising team: Team Abby (6)

Sonya Smelyansky VanBortel 
Organizer
Raised $175 from 4 donations
Beacon Island, NY
John Lamar 
Beneficiary
Leslie Lamar 
Team member
Raised $1,430 from 9 donations
Michelle Doyle 
Team member
Raised $325 from 9 donations
Angela Sickles 
Team member
Raised $20 from 1 donation
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