Help Find a Cure for Bayla
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This is our daughter Bayla. She's a little fighter with attitude, but the last four years of her life have been filled with lots of pain. See we aren't quite sure what Bayla has. She's been hospitalized for skin infections four times in the last 18 months. It's endless nights of itching, infections, rashes, crying, and stress on her 11 year old body. Now we are screening out things for the immune system like lupus.
Over the last four years, she is getting sicker and sicker. Her little body is fighting and having allergic reactions to more and more things. Sometimes her skin hurts so badly that she isn't able to physically smile or laugh. When tears roll down her face they leave streaks of white because even the light pressure of her tears causes her skin to react. We lay her little head down at night worrying that one morning she might be gone because her little body can't handle the fight anymore.
In just four years she is now allergic to the cold, wind, heat, and sun which means we never know how she is going to feel when we go outside. Her reactions are unpredictable which is why we are so desperate for answers so her little body doesn't give up the fight.
While other kids are outside playing, Bayla has to stay inside almost all the time because it's too (hot/cold/windy) She cries that "she just wants her life back" because rather than days filled with playdates and friends they are filled with pain and fear because despite seeing some of the best doctors in the country (Mayo Clinic) their still isn't an answer for her.
We moved to Minnesota last year to hope that Mayo Clinic would find us an answer or at least some relief for her conditions, but they haven't been able to. Our GoFundMe account is in hopes that help find out what is going on with our daughter so she can be a kid again. We are trying to get into a Denver hospital that specializes in eczema and allergy while working with Children's Hospital of MN to see if Bayla might have Lupus (an incurable condition) Our medical bills are already well over $5,000 in copays. We are asking for the support of our friends and family to help us to be able to continue Bayla's medical care. Her case if very complicated, and the costs are mounting.
To keep Bayla safe at home, we have to replace all of our dishes, cooking utensils, and remove all plastic out of our home (due to a new formaldehyde allergy). We also have to clean religiously to keep the dust mites down, and all of Bayla's food has to be organic and made from scratch which has limited Ashley's ability to work.
Bayla is such a strong little girl, but after four years of having adults asking "what's wrong with her" to her face, even she is losing hope. Please help us find the answers we need for her. When most parents are hoping for their kids to have great fun filled days, we are just hoping for days when she no longer has sleepless nights and scarring from the damage her unknown condition has done to her skin.
Thanks so much for taking a look at our page, and to read more about Bayla's progress visit mom's blog and help spread awareness about severe eczema and food allergies. Bayla's Journey
Bayla LOVES making bracelets so as a thank you, she is going to send bracelets to her supporters. Each rewards level is named after something Bayla is currently obsessed with. Thought it might be fun to get to know her a little bit better!
Over the last four years, she is getting sicker and sicker. Her little body is fighting and having allergic reactions to more and more things. Sometimes her skin hurts so badly that she isn't able to physically smile or laugh. When tears roll down her face they leave streaks of white because even the light pressure of her tears causes her skin to react. We lay her little head down at night worrying that one morning she might be gone because her little body can't handle the fight anymore.
In just four years she is now allergic to the cold, wind, heat, and sun which means we never know how she is going to feel when we go outside. Her reactions are unpredictable which is why we are so desperate for answers so her little body doesn't give up the fight.
While other kids are outside playing, Bayla has to stay inside almost all the time because it's too (hot/cold/windy) She cries that "she just wants her life back" because rather than days filled with playdates and friends they are filled with pain and fear because despite seeing some of the best doctors in the country (Mayo Clinic) their still isn't an answer for her.
We moved to Minnesota last year to hope that Mayo Clinic would find us an answer or at least some relief for her conditions, but they haven't been able to. Our GoFundMe account is in hopes that help find out what is going on with our daughter so she can be a kid again. We are trying to get into a Denver hospital that specializes in eczema and allergy while working with Children's Hospital of MN to see if Bayla might have Lupus (an incurable condition) Our medical bills are already well over $5,000 in copays. We are asking for the support of our friends and family to help us to be able to continue Bayla's medical care. Her case if very complicated, and the costs are mounting.
To keep Bayla safe at home, we have to replace all of our dishes, cooking utensils, and remove all plastic out of our home (due to a new formaldehyde allergy). We also have to clean religiously to keep the dust mites down, and all of Bayla's food has to be organic and made from scratch which has limited Ashley's ability to work.
Bayla is such a strong little girl, but after four years of having adults asking "what's wrong with her" to her face, even she is losing hope. Please help us find the answers we need for her. When most parents are hoping for their kids to have great fun filled days, we are just hoping for days when she no longer has sleepless nights and scarring from the damage her unknown condition has done to her skin.
Thanks so much for taking a look at our page, and to read more about Bayla's progress visit mom's blog and help spread awareness about severe eczema and food allergies. Bayla's Journey
Bayla LOVES making bracelets so as a thank you, she is going to send bracelets to her supporters. Each rewards level is named after something Bayla is currently obsessed with. Thought it might be fun to get to know her a little bit better!
Organizer
Ashley Sears
Organizer
Dayton, MN
