Let me tell you about my best friend, Amanda. She has been battling gastroparesis for quite some time now. For those of you who do not know what gastroparesis is, it is a condition where your stomach's motility is slowed down or doesn't work at all, preventing your stomach from emptying properly. When Amanda's stomach doesn't empty, it causes her to puke up everything, and nothing gets absorbed for nutrients. She can not eat, drink, or intake anything through her mouth. She gets all of her nutrients from a PICC line that delivers TPN directly to her veins but has had many complications over the years, including blood clots, bactermia, and sepsis. Over the past decade, she has been dealing with chronic illness. She has autoimmune refractory idiopathic gastroparesis, POTS, IBS, a hiatal hernia, and AGID(autoimmune gastro intestinal dysmotility. She has had numerous procedures and surgeries, including a GPoem, gastric stimulator placement, ileostomy, gtube, jtubes(tube feeds were a failure).
Currently, she is in the hospital with debilitating symptoms: immense pain, unbearable nausea, constant heaving and vomiting, bloating, and pretty much feeling like she has got hit by a truck. She just got transferred to a more advanced hospital to be evaluated for a major surgery gi resection/transplant. The first surgery is complex to reroute Amanda's system, so the stomach is draining through the liver instead of the ng tube, decompressing the stomach(hopefully slowing down the vomiting). After that procedure, they plan to do a resection and transplant her GI tract.
Her husband Chris has truly bought new meaning to “for better or worse” and “in sickness and in health”, whether he’s setting alarms to draw up Amanda's meds and set up TPN (sometimes she is sleeping and he’s careful not to wake her), bringing her anything she needs in the hospital, giving her neck and shoulder massages after being hunched over vomiting all day, to helping her wash herself, carrying her down the stairs she can’t walk, pushing her wheelchair, and always at her side loving her, supporting her, and rooting for her. He is fantastic, and I'm so happy that she has him.
Between the hospital bills, surgery costs, travel for her husband to get to and from the hospital, and so much more, it is becoming challenging to manage bills while caring for Amanda. We are raising funds to help cover the cost of Amanda's operation, recovery, hospital bills, and ongoing medical expenses. 100% of the funds donated will be going directly to Amanda and Chris for ongoing medical needs.
More info will be added here as I get it.
Thanks for helping support Amanda.