My husband's ALS Medical Expenses
Donation protected
UPDATE: I'm reposting with an update because we still need help and we are running out of time Jay has to go back to Cleveland for further testing. Doctors are trying to rule out ALS. If it's not ALS, it's something that mimics ALS and that can be worse. He's not well, has difficulty breathing because of partial lung collapse and part of his diaphragm is paralyzed. He has spasms there as well and they are very painful, plus he has all of the other ALS symptoms. This fundraiser had been up for months but it has not done well. I do thank those who have donated with all my heart!!! You will never know just how grateful I am for your kindness, love, and support. For those who have supported us with prayer, I am also so very grateful!!! That means everything to us that you carry us to God each day in prayer as we battle this horrible disease. We still need help to get back to Cleveland. It's so expensive! The hotel is outrageous even with the discount, and so are the restaurants. If you can help we would be so grateful. Thank you!!!
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In June my husband was told he may have ALS, in July it was confirmed that he does have ALS. ALS stands for Amyotrophic lateral sclerosis. (Doctors now say it may be another disease that mimics ALS and is worse. It will take more testing to find out which disease it is that he has). It is also known as Lou Gehrig's Disease and in other countries, it is known as Motor Neuron Disease. The disease is described by the ALS Association this way: "Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their demise. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, people may lose the ability to speak, eat, move and breathe. The motor nerves that are affected when you have ALS are the motor neurons that provide voluntary movements and muscle control. Examples of voluntary movements are making the effort to reach for a smartphone or step off a curb. These actions are controlled by the muscles in the arms and legs." (http://www.alsa.org/about-als/what-is-als.html)
My husband has to go to the ALS Clinic in Cleveland, OH. We live in Eastern KY. We live on a fixed income as both of us are disabled. We need the funds for fuel to get there, pay for a hotel room for at least three days, and buy food. We have been trying to figure out what to do and this was our only means of trying to raise the money. This is an URGENT situation and we don't have the time or ability to save up for it.
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In June my husband was told he may have ALS, in July it was confirmed that he does have ALS. ALS stands for Amyotrophic lateral sclerosis. (Doctors now say it may be another disease that mimics ALS and is worse. It will take more testing to find out which disease it is that he has). It is also known as Lou Gehrig's Disease and in other countries, it is known as Motor Neuron Disease. The disease is described by the ALS Association this way: "Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their demise. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, people may lose the ability to speak, eat, move and breathe. The motor nerves that are affected when you have ALS are the motor neurons that provide voluntary movements and muscle control. Examples of voluntary movements are making the effort to reach for a smartphone or step off a curb. These actions are controlled by the muscles in the arms and legs." (http://www.alsa.org/about-als/what-is-als.html)
My husband has to go to the ALS Clinic in Cleveland, OH. We live in Eastern KY. We live on a fixed income as both of us are disabled. We need the funds for fuel to get there, pay for a hotel room for at least three days, and buy food. We have been trying to figure out what to do and this was our only means of trying to raise the money. This is an URGENT situation and we don't have the time or ability to save up for it.
Organizer
Karen Bledsoe
Organizer
Grayson, KY
