Making Memories for Aiden
Donation protected
We are the parents of Aiden, Felice & Tanya Caruso; who is one very special little boy but also a miracle. We have identical triplet boys who are 3 year old and Aiden is the youngest of the lot. He is much loved by his family and friends especially by his siblings. He always know how to put a smile on your face even though he has suffered so much in life. Our boys were born at 26wks and there weights were Romeo- 885g, Xavier- 860g and Aiden – 525g. Aiden has always been our little fighter no matter what life throws his way, we couldn't be proud more of him.
Aidens Story:
At 26 weeks and 6 days Aiden just made it to 525grams as he was behind in growth by 2 weeks, so the medical team decided that it was time for the boys to be born. During the birth, I had a caesarean that went well. As soon as Aiden was born, he was taken to the NICU and was put on C-PAP oxygen. He was on C-PAP for one week and was doing well, so they reduced him onto high flow oxygen.
While in NICU at the Mercy Hospital, Aiden had a rocky start to life. When he was 10 days old he got Necrotizing Enterolitis, which affects some premature children. It meant that Aiden’s bowel was starting to have tissue death, and gave him symptoms of food intolerance, blood in his stool, and meant that food couldn’t pass through his intestines and gave him abdominal distension. He got put on a ventilator.
Once he recovered from NEC, his heart and lungs started to fail. This was noticed onced the NICU paed doctors tried to take him off the ventilator several times, which caused his lungs to collapsed. They realised that his PDA did not closed once born and the blood flow from this was leaking into his lungs, which caused them to deflate and collapse. He was prepped for surgery that afternoon and underwent a heart operation to ligate his PDA with a metal clip.
At 93 days old, he had an eye examination to see how his Retinopathy of Prematurity (ROP) was developing. Unfortunately due to the severity of how advanced it was, his eye specialist insisted that day he have laser surgrey.
On the 4th September 2013, we were able to take Aiden home from hospital on low flow oxygen on 0.25 as he needed ongoing care to ensure he was breathing.
At the age of 2 years, 2 months we had a neurologist appointment and an MRI which confirmed that Aiden has Cerebral Palsy. Before this, we were uncertain as to how Aiden’s skills may be developing, and now we know that Aiden has significant damage to his brain and will need ongoing support for the rest of his life. Aiden has still had frequent hospital admissions and appointments either for vision, neurology, paediatric or cardiology.
Tragically, this week we received news that flipped our world upside down. Aiden, was diagnosed borderline legally blind which means he can only see 6m in front of him where a normal person can see up to 60m. But also he has severe myopia (short-sightedness) which means his script goes up every 3 months. Sadly, my wonderful family are now left with precious limited time with their little boy until his vision goes.
We would like to raise some money for Aiden and our family so we can show him the world like Wiggletown in Queensland as well as paying for further medical bills and equipment he might need in the future. We would like to make some amazing memories with our son, without the stresses of worrying about the costs that will come later.
Your kind donations will allow Aiden to enjoy and make memories with his family, and also help with the inevitable costs to come.
Please help Making Memories for Aiden.
Help spread the word!
Aidens Story:
At 26 weeks and 6 days Aiden just made it to 525grams as he was behind in growth by 2 weeks, so the medical team decided that it was time for the boys to be born. During the birth, I had a caesarean that went well. As soon as Aiden was born, he was taken to the NICU and was put on C-PAP oxygen. He was on C-PAP for one week and was doing well, so they reduced him onto high flow oxygen.
While in NICU at the Mercy Hospital, Aiden had a rocky start to life. When he was 10 days old he got Necrotizing Enterolitis, which affects some premature children. It meant that Aiden’s bowel was starting to have tissue death, and gave him symptoms of food intolerance, blood in his stool, and meant that food couldn’t pass through his intestines and gave him abdominal distension. He got put on a ventilator.
Once he recovered from NEC, his heart and lungs started to fail. This was noticed onced the NICU paed doctors tried to take him off the ventilator several times, which caused his lungs to collapsed. They realised that his PDA did not closed once born and the blood flow from this was leaking into his lungs, which caused them to deflate and collapse. He was prepped for surgery that afternoon and underwent a heart operation to ligate his PDA with a metal clip.
At 93 days old, he had an eye examination to see how his Retinopathy of Prematurity (ROP) was developing. Unfortunately due to the severity of how advanced it was, his eye specialist insisted that day he have laser surgrey.
On the 4th September 2013, we were able to take Aiden home from hospital on low flow oxygen on 0.25 as he needed ongoing care to ensure he was breathing.
At the age of 2 years, 2 months we had a neurologist appointment and an MRI which confirmed that Aiden has Cerebral Palsy. Before this, we were uncertain as to how Aiden’s skills may be developing, and now we know that Aiden has significant damage to his brain and will need ongoing support for the rest of his life. Aiden has still had frequent hospital admissions and appointments either for vision, neurology, paediatric or cardiology.
Tragically, this week we received news that flipped our world upside down. Aiden, was diagnosed borderline legally blind which means he can only see 6m in front of him where a normal person can see up to 60m. But also he has severe myopia (short-sightedness) which means his script goes up every 3 months. Sadly, my wonderful family are now left with precious limited time with their little boy until his vision goes.
We would like to raise some money for Aiden and our family so we can show him the world like Wiggletown in Queensland as well as paying for further medical bills and equipment he might need in the future. We would like to make some amazing memories with our son, without the stresses of worrying about the costs that will come later.
Your kind donations will allow Aiden to enjoy and make memories with his family, and also help with the inevitable costs to come.
Please help Making Memories for Aiden.
Help spread the word!
Organizer
Tanya Aragona Caruso
Organizer
Thomastown VIC
