Apert syndrome

Let’s just start by saying this little guy is a fighter. Multiple surgeries before he is even one year old. Happy baby all the time his most enjoyment is Mickey Mouse clubhouse. Apert syndrome is a very rare and unpredictable diagnosis. The syndrome causes bones to fuse before they are ready to. One thing I want to be clear about is this family is tough, they don’t want your pity and they don’t want you to feel bad for them. They are quite frankly handling business on there own. However, here is what we are here for, vacation time has run out, FMLA pays for nothing. Bills come in, work can only come far and few between with specialist appointments, doctors visits and infections. If there is anything we can do to help this amazing family it would be God given. They ask for nothing but we are for them. The most positive energy comes from this family but if there’s anything we can do to help then please do.