Support disability adaptations for Rianna's home

Aim: To adapt Riannas forever home, increase independence and improve her quality of life. Rianna is my 27 year old twin sister who has Cerebral Palsy, learning difficulties and gastrointestinal issues. Our house was poorly adapted in 2003 by the local council by fitting a downstairs shower room, a through floor lift and a track hoist in her bedroom upstairs. We are liable to pay annual maintenance costs and call out fees for these however, unfortunately DLA does not stretch far and mobility equipment is very expensive. The council can not fully fund the necessary renovations despite admitting their mistake from 2003 but have agreed to pay part of the cost of the work. This fund is to raise the excess amount. With your donations we hope to restructure the layout, update and add necessary equipment, either remove the lift and build her a bedroom onto her bathroom extension downstairs which would give her more space, or widen the lift work and provide moving and handling and changing equipment in the bathroom to improve independence and give her privacy. As well as knock down a conjoining wall that would allow Rianna to access the kitchen Rianna has now outgrown her equipment and the layout of the house and is no longer in school or college. We would like her to be able to enter more rooms of the house as she is at home 95% of the time. Currently Rianna can only go in her own bedroom, poorly adapted shower room that is downstairs and the front room. Rianna enjoys baking and would also like access to the kitchen, which she has never seen before or been able to use. The shower room extension that was built is located downstairs leading on from the front room. Meaning Rianna has to risk her dignity and privacy by passing through the front room and bay windows unclothed and then going into her shower room, which has no changing table or hoist. Furthermore her lift is now too narrow and her manual wheelchair (used when her electric chair breaks down) cannot fit in the lift, causing a serious fire hazard. For example a few weeks ago a part on Riannas Electric chair broke and she had to remain in bed for three days. If there were a fire we would have been stuck. We have already spent over £2k this year on fixing and replacing small parts of her equipment. This is a struggle as my mother hasn't worked since 1997 due to her full time commitment to Rianna, and I contribute as much as possible but cannot work full time due to my Autism. Rianna is cared for by my stay at home mother and myself as an agency was too constricting for her as a young adult who wants to stay out of bed until at least 10pm. She gets very little hours of social care (estimately 2 hours a day here and there) and has currently been without a social worker for over a year. Therefore these adaptations would not only help Rianna, but also make caring for her that bit easier for her family long term and remove the likelihood of Rianna needing to go into residential care in the future. Pictures and videos will be uploaded of work if/when it starts and all funds will be accounted for

Donations

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  • Christine Dystant 
    • £20 
    • 10 d
  • Adrihani Rashid 
    • £10 
    • 17 d
  • Isabel Pastoor 
    • £8 
    • 17 d
  • Kwabena Agyare 
    • £30 
    • 17 d
  • Mia Obertelli 
    • £20 
    • 17 d
See all

Fundraising team: Fundraising team (3)

Lauren Olivia 
Organizer
Bromley, Greater London, United Kingdom
Sam Llewellyn 
Team member
Suzette Llewellyn 
Team member
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