![Main fundraiser photo](https://images.gofundme.com/5vxAR5DVQrVjZ-nzpG-YX3cF3Zk=/720x405/https://d2g8igdw686xgo.cloudfront.net/32733766_1536203085452529_r.jpeg)
Bentleys Journey
Donation protected
Bentley is 6 years old and suffers from a rare genetic disorder called Multiple Hereditary Exostoses. It causes tumors to grow on his bones and joints causing severe pain, limb length discrepancies, bowing of his forearms, nerve constriction and loss of mobility. He now will require surgeries to remove and repair damage and lengthening surgeries as well. He has also been accepted into the Clementia clinical trial in Florida which will require traveling back and forth from Alabama to Florida regularly. He could use some financial help to insure the best possible treatment for this disease. If you could find it in your heart to make a donation or just say a prayer for the children suffering with MHE we would appreciate it.
Organizer
Kerrie Barnes Lewis
Organizer
Double Springs, AL