Karen, my little sister,  who is just 11, was diagnosed with NF2 when she was three. On September 20th our family are all Paris,France for her first surgery and definatly NOT her last surgery. NF2 is a rare genetic disease affects 1 in 30,000 and causes tumors to grow on the fibers of the nerves. These tumors can grow throughout the body or centralized in certain areas, like the brain, eyes, ears or spinal cord. Tumors in these areas can cause blindness, deafness, paralysis or death.  

Other than that, she is your average 6th grader. She has Harry Potter marathons, pop her own popcorn, rides horses and tries to sing(quite horribly honestly) but of course as her older sister (a rebellious highschooler :)) I have to deal with this on a daily basis. Unfortunately this is may not continue in the future.  So please help us in trying to find a cure. Because NF2 is such a rare disease we need a lot of support and money to get the labs interested in finding a cure.  All the money we collect is going to NF2 Biosolutions who are committed to finding a genetic cure for this dangerous disease.
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Sharon Atlan
Alameda, CA
Nf2 Biosolutions
Registered nonprofit
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