HOPE FOR JAHKOBI

PLEASE HELP IF YOU CAN**** 



Jahkobi Keegan Anderson is a very special llittle man who was dealt a very awful hand-
Much like the others with this disease.
Jahkobi  was born on August 6, 2018
to my cousin Pahtondra Hart. 

He was born with a double hernia, cyst on his
kidneys, an enlarged liver and spleen, a spinal abnormality,
hearing and vision problems, a small hole in his heart and
respiratory issues.

Winter of 18’ Jahkobi was hospitalized several times with RSV And pneumonia
due to his respiratory issues.

After numerous visits with
specialists, Jahkobi was finally diagnosed with a rare (1 in 200,000) genetic disorder called “INFANTILE GM1 Gangliosidosis”
It is an inherited disorder that progressively destroys nerve cells in the brain and spinal cord.  


There currently is NO CURE for GM1.
Life expectancy is up to 3 years old. So we have very little time with him and we are aware of that but promise to attempt to jump every obstacle to give him longer.


If if you can help- it would be greatly appreciate.
Your money will go to many things, including the lengthy list of medical bills, the daycare bills Jahkobi’s family receives since he is a special case, and the cost it covers for his mother to take off every single week for the 15 & counting list of doctors he has to see working for him to keep him alive. 

This is the worst news a parent can hear. That their child is dying and there’s nothing you can do about it. But with the help of science and God ; we can have hope and we know everyday is a blessing with him. 

Thank you for your contributions, time and prayers.