My mother was diagnosed in 1994 with a life threatening interstitial lung disease known as Lymphangioleiomyomatosis. It is a rare lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system and kidneys. Unregulated growth of these cells can lead to loss of lung function, accumulation of lymph rich-fluid in the chest and abdomen and growth of tumors in the kidneys. Initially she was given only a 10 year survival rate. Over the years she continued to beat the odds and many doctors couldn't believe how well she was doing and that she was still able to work part time. In 2012, she was in a terrible car accident in which she broke her pelvis and went into pulmonary failure. She developed blood clots in her lungs due to the broken pelvis and from that point her initial LAM disease has continued to slowly worsen to the point where she has required oxygen therapy at home. Fast track to May of 2017 and her disease had gotten so bad that she was unable to continue working at all and the doctors said her best chances were to go ahead and start the process of lung transplantation. She did all of her preliminary transplant testing in November and was told she was a very good candidate and that based on her test results and the degree of her lung condition she probably would not have to wait on the list long for donor lungs.
Thank you for your support!